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	<title>愛如果有聲音 彙整 - 愛知識 iKnowledge 聊聊那些不好聊的事</title>
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	<description>我們想跟你聊聊那些日常中會遇到、但卻不知道該怎麼聊的人、事、地、物，還有心情。</description>
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	<title>愛如果有聲音 彙整 - 愛知識 iKnowledge 聊聊那些不好聊的事</title>
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		<title>難過的時候，想想自己不是一個人，我就能勇敢</title>
		<link>https://iknowledge.info/2023untold-not-alone/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 21 Dec 2023 08:30:23 +0000</pubDate>
				<category><![CDATA[健康與醫藥]]></category>
		<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17310</guid>

					<description><![CDATA[<p>2019年我二十五歲，因毒品案件被判刑四年二月，在這次執行中才知道自己感染了愛滋，當下真的有許許多多難以言喻的悔不當初。值得慶幸的是，我的家人並沒有因為我入獄而放棄我，我媽和阿姨除了每週輪流來看我之外，也一直保持通信。一直糾結該不該告訴她們我有HIV的事，但最後還是沒那個勇氣。</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-not-alone/">難過的時候，想想自己不是一個人，我就能勇敢</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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									<p><b>發聲者：林昶佐<br /></b> 立法委員<br />閃靈樂團主唱<br /><a href="https://www.facebook.com/limfreddy" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									YOUR STORY, MY SOUND_</span></strong>								</div>
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									你的故事、我的聲音</span></strong>								</div>
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									<p><b>作者：Dillen 迪里安</b><br />發生年代：2019～2021</p>								</div>
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									<p>為了參加這次的徵文比賽，我寫了無數張的草稿，最後決定用輕鬆一點的方式來說我的故事，因為知道我的故事有可能會被看見，也讓我更有勇氣來發聲。</p><p>2019年我二十五歲，因毒品案件被判刑四年二月，在這次執行中，我才知道自己竟然感染了愛滋，當下真的有許許多多難以言喻的悔不當初。值得慶幸的是，我的家人並沒有因為我入獄而放棄我，我媽和阿姨們除了每週輪流來看我之外，我們也一直保持通信。我不是一個喜歡活在粉紅泡泡世界中的人，一直糾結該不該告訴她們我有HIV的事，但最後還是沒那個勇氣⋯⋯。</p><p>在獄中的每一天，為了讓家人放心，我都會主動分享自己的日常。直到2021年8月時，我意外得知在2020年9月，網路上有一則新聞，內容報導：「宜蘭有一個十七名受刑人組成的樂團，因罹患愛滋所以牙齒掉光光，法務部長了解狀況後，補助了大家做假牙的費用。」就是這則報導，讓我決定把我的事告訴家人。</p><p>為了不想一一做解釋，我把自己是雙性戀，以及愛滋病感染者的身分，一併告訴我媽媽和四位阿姨。老實說，當我把一封封的信全部寄出去後，就開始感到後悔了，覺得是不是太衝動了，但也只能硬著頭皮面對了。等待她們回信的時間真的很煎熬，想了無數種狀況，也做好最壞的準備，結果沒幾天後，我就被叫去行動接見了，我阿姨說：「其實大家早就知道你HIV的事了，只是你沒主動開口，我們也不敢問，怕你不想讓大家知道，也怕你會受傷，至於性向的事，我們不會怎樣啦！阿姨們什麼大風大浪沒見過，總之，你好好注意自己的身體健康。人生的上半場功課你搞砸了，但還有下半場可以努力，只要你願意重新開始，為自己負責，家人都會支持你，我們都會調整彼此最舒服的生活模式，等你回家吃飯、聊天。」</p><p>後來我也收到媽媽的來信，她說：「最近比較忙，你不要亂想喔！事情遇到了就要學著接受，時間會是最好的良藥，未來無論遇到什麼難關，只要撐過去就好了。」不知道為什麼，本應該是我安慰她們才對，反而是我又被她們的愛給淹沒了。</p><p>這趟執行，能遇到來自不同社會角落的人，除了分享不同的人生際遇之外，也讓我重新找到對「家人」、對「愛」的定義。近幾年因為COVID-19疫情的肆虐下，看見了不少報導，其中最讓我印象深刻的是，有些確診者因害怕被別人發現自己染疫，而隱瞞自己的病情不敢就醫，雖然這是不好的行為，但我卻能理解他們當下的焦慮與徬徨。相信誰都不願意當那個少數者，現在的社會確實進步了不少，但仍有進步的空間，有時我們需要的不是同情，而是簡簡單單的陪伴。對我來說，只要讓我覺得，在這段旅途中「有你在」就夠了。</p><p>明年2月就要假釋二報了，也表示我離重返社會的日子不遠了，未來的日子肯定有許多挑戰，我想⋯⋯我也需要一些時間去適應新的身分、新的生活。但只要想著，在這個世界的某個角落，也有著跟我一樣遭遇的人，他正在努力生活著，我就不再感到害怕了。</p><p>最後，我想要感謝愛滋，因為它讓我更認識自己，不只認識了自己的軟弱，也認識了自己的強大及渺小，更認識了自己的美好。也要在此感謝正在看我故事的你，讓我們一起成為一個有溫度的人，好好體會生活中的點點滴滴，無論是快樂的、悲傷的，都是能讓我們成長的養分，相信只要我們能夠勇敢地繼續發聲，這個世界一定能夠變得更美好的！</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-not-alone/">難過的時候，想想自己不是一個人，我就能勇敢</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></content:encoded>
					
		
		
			</item>
		<item>
		<title>家的力量</title>
		<link>https://iknowledge.info/2023untold-power-of-family/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 14 Dec 2023 08:30:22 +0000</pubDate>
				<category><![CDATA[健康與醫藥]]></category>
		<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17430</guid>

					<description><![CDATA[<p>那時的我年少輕狂，從沒想過自己有一天會離死亡這麼近，天不怕地不怕的我，打打殺殺是家常便飯，殊不知卻栽在自己的大意。同時間，懊悔及恐懼排山倒海地壓得我感覺快要喘不過氣，當下的第一個念頭就是想到我最愛的家人，犯了錯而入獄受罰，對年邁的父母而言，已經是一件令他們傷心的事情...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-power-of-family/">家的力量</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p>發聲者：林威良 Will Lin<br>歌手<br><a href="https://www.facebook.com/willlin0105" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									YOUR STORY, MY SOUND_</span></strong>								</div>
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									你的故事、我的聲音</span></strong>								</div>
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									<p><b>作者：希望</b><br />發生年代：2004年</p>								</div>
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									<p>嘰嘎作響的電風扇夾帶著熱空氣肆虐濕黏的肌膚，但我的心已經彷彿被推入冷凍庫般寒冷，我強裝鎮定地聽著駐守軍事監獄的醫官告知我感染HIV的殘酷事實。那時的我年少輕狂，從沒想過自己有一天會離死亡這麼近，天不怕地不怕的我，打打殺殺是家常便飯，殊不知卻栽在自己的大意⋯⋯同時間，懊悔及恐懼排山倒海地壓得我感覺快要喘不過氣，當下的第一個念頭就是想到我最愛的家人，犯了錯而入獄受罰，對年邁的父母而言，已經是一件令他們傷心的事情，感染了HIV，不管對我還是他們，無疑是更錐心刺骨的二度傷害。好多好多的「早知道」不停地在我腦海中浮現，我卻也明白這份後悔已經為時已晚了。</p><p>我拖著沉重的腳步，完全像是靈魂被抽離似的跟隨主管指示，換入專門收容HIV病友的舍房。現在回想起來，矯正機關能有如此完善的集中管理政策，對於感染者而言，特別的感到心安，至少當時的我不必獨自一人面對這份無法向任何人訴說的難過，以及後續的醫療事宜。然而，因為十幾年前的資訊尚未普及與發達，再加上當時我們很多人都沒有主動向監所內請來的醫生，詢問清楚關於愛滋病的所有醫療知識，導致我在道聽塗說的情況下，以為自己罹病後的壽命只剩下不到十年，加上我當時的刑期已經超過十年，這麼一來，我不就得病死在冷冰的高牆內了嗎？這讓我徹底絕望。</p><p>剛得知的前幾天，我幾乎每晚都輾轉難眠，心裡思忖，到底該不該在下次父母親來看我的時候向他們坦承一切，一直到他們來會客的那天，在我緩緩走向會客室時，將心一橫做下決定⋯⋯「爸、媽你們以後不要來看我了，就當沒我這個兒子！」當我一坐下，拿起電話講的第一句話便是我做出的決定，深怕猶豫不決稍稍遲疑會沒有勇氣說出口。當然我的父母是一陣錯愕，趕緊問我發生了什麼事？我才講到一半，媽媽已經泣不成聲，我一邊忍著淚水，一邊仔細看著她的臉，看著每道歲月留下的痕跡，彷彿每一道皺紋都承載著我每一次的叛逆，爸媽老了，而我卻還像個不懂事的孩子讓他們操心。</p><p>當我把事情完整告知後，三個人之間僅留下哽咽抽噎的哭聲，其實當時我早就有了輕生的念頭，看著父母難過的樣子，我卻還是說出了一切，並將他們推離我往後的人生。雖然只隔著一道透明玻璃，卻好似兩個不同世界那樣的遙遠，就在這時，一向不善言詞的爸爸用顫抖並生氣的語氣說：「我們都沒有放棄你了，你憑什麼放棄你自己！」我發現老爸也掉下眼淚，我一看到堅強的爸爸哭了，就再也壓抑不住讓眼淚潰堤。</p><p>結束會課，回到房內，我回想著爸媽的每一句話，同時想起了我在閱讀一本書時讀到的一句話：「真正的勇敢，不是什麼都不怕，而是面對恐懼，與它直球對決，哪怕輸了，也一生無憾。」以前的我，不怕打、不怕殺，自以為如此即是勇敢，但擁有鋼鐵般堅強內心的爸媽，如今看來，才是我生命中的勇者，我說什麼都要為了心愛的家人勇敢一次！</p><p>我開始主動深入了解所有關於HIV病症的醫療知識，也開始帶著同樣罹病的其他同房獄友透過了解而除去不必要的恐慌，同時一起把正確的衛教觀念與家人溝通，讓家人知道這並不是絕症，感染後的人生只是走了一條難走且蜿蜒崎嶇之路，但絕對不是死路。</p><p>這樣心境上的轉變，也讓我更了解到一定還有更多人，也曾經跟我一樣徬徨無助。所以我主動和同單位同學參加監所的話劇比賽，主題便是愛滋病相關的衛教宣導，透過輕鬆的生活化對話洗刷愛滋汙名，我們只是生病，而疾病本身並無貴賤之分，沒有什麼疾病比較高級！感染者也有權利不再自卑與絕望，也讓其他人了解如何避免感染，進而知道怎麼安全地與感染者相處、生活。非常幸運的，在比賽中獲得共鳴、得到冠軍！與家人分享時，我看見父母笑得開心，也笑得欣慰，同樣隔著會客室那片透明玻璃，卻不再有被隔成兩個世界的孤獨感。相反的，我的世界被父母的愛重新點亮，我不再自怨自艾想推開愛我的人，而是勇敢地重新走入他們的世界，在未來的日子裡，一起更努力地走下去。</p><p>疾病本身並不可怕，可怕的是無知的有色眼光，希冀在網路方興未艾、知識普及的現在及未來，不再有歧視、偏見，加油！我們共勉！</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-power-of-family/">家的力量</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>無法言語的愛</title>
		<link>https://iknowledge.info/2023untold-untold-love/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 07 Dec 2023 08:30:13 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17418</guid>

					<description><![CDATA[<p>得知結果的我，出奇冷靜，就連負責我的個案管理師見到我知道結果後平靜無波的情緒及坦然接受的反應時，都感到訝異。殊不知在看似理性面對的表象下，我的內心卻是澎湃不已，完全無法相信並接受這突如其來的事實，更別說要向親人坦承，我說不出口...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-untold-love/">無法言語的愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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									<p><span style="color: #e8d29e;"><b>發聲者：原來是John</b></span><br /><a href="https://youtube.com/@soitisjohn" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<p><b>作者：R.S</b><br />發生年代：2011～2021年 </p>								</div>
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									<p>建國百年的那個夏天，是我一生中永難忘懷的一個夏天，在某次例行匿篩結束詢問結果當中，我被電話那頭的護理師告知我的血液異常，需再次抽血做進一步確認。拜知識普及所賜，我已然知道那代表著什麼意思，心裡雖然有答案，也知道最後結果應與自己所想的八九不離十，但我卻一直抱持著期待，希望奇蹟會降臨在我身上。然而事與願違，結果出爐，毫無懸念，我感染了愛滋。</p><p>得知結果的我，出奇冷靜，就連負責我的個案管理師見到我知道結果後平靜無波的情緒及坦然接受的反應時，都感到訝異。殊不知在看似理性面對的表象下，我的內心卻是澎湃不已，完全無法相信並接受這突如其來的事實，更別說要向親人坦承，我說不出口。</p><p>在網路發達及知識爆炸的當時，由於衛教得宜，使我雖無法接受感染愛滋的事實，但我卻對「它」並無因過往的名稱而有所偏見，不過要能夠讓家中兩位長輩理解並接受我有愛滋這件事，卻是一個大大的難題。</p><p>我的父母出生於五○年代，長於六○年代，那時的民風純樸，知識水準不高，又加上父親只有國中學歷、母親小學未畢業，以及當時的衛教並不普遍，對於愛滋相關知識更是不了解。種種因素之下，雖不至於完全沒聽過「愛滋病」，但卻有可能是因其他的別名或傳染途徑而得知；在這樣已然根深蒂固的偏見觀念影響下，是要如何向他們說明並道出一切，甚而接受這樣的事實？雖然曾有過幾次想不顧一切地全盤托出，但看父母年邁的身軀，怕他們知道事實後會禁不起打擊，到口的話，又全都吞回肚裡去，因為不忍，不忍他們到老了還要替我擔這個心，也不忍說出這個會讓他們傷心難過的事實。幾經掙扎之後，我決定永遠保持沉默，因為愛他們，我選擇不去傷害他們；因為愛他們，我選擇把這無法說出口的愛，化為行動，變成沉默。</p><p>感染愛滋的這十年間，我從原先無法接受，到現在的坦然面對並與之共生共存，我並不感到孤獨，雖然我是一個人孤軍奮戰。這些年來偶爾聽到身邊朋友因感染愛滋而遭到親友疏離，甚至趕出家門；亦有朋友因愛滋而更珍惜彼此的故事。但對我而言，不論是哪種結果，我想在整個過程當中，一定會有傷害產生，這是我最不願意的事，也許會有人覺得我自私，也許會有人無法認同，但這就是我對他們的愛，一份永遠都無法言語的愛。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-untold-love/">無法言語的愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>1273個日子</title>
		<link>https://iknowledge.info/2023untold-1273-days/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 30 Nov 2023 04:15:33 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17419</guid>

					<description><![CDATA[<p>熱戀期間生活總是充滿粉紅泡泡，瑣碎的數字、物品或日期都可以充滿紀念意義，街道上寒風再冷冽，牽手走起來都是如沐春風，窗外雨再大都是「紅燭昏羅帳」，渾然不覺無情的風雨即將從意想不到的方向襲來。我自己有定期匿篩的習慣，與男友交往一段日子後，到了要匿篩的時間，我自己先行預約完成匿篩...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-1273-days/">1273個日子</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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										<content:encoded><![CDATA[		<div data-elementor-type="wp-post" data-elementor-id="17419" class="elementor elementor-17419">
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									<p><b>發聲者：陶晶瑩</b><br />金鐘主持天后<br /><a href="https://www.facebook.com/profile.php?id=100044575080077&amp;mibextid=LQQJ4d " target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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															<img loading="lazy" decoding="async" width="1920" height="900" src="https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1.webp" class="attachment-full size-full wp-image-18240" alt="HIV在日復一日的提醒鈴聲中逐漸融入日常，我們從這些瑣碎的小事逐漸累積與HIV平等共存的力量，也許未來仍存在不安與脆弱的時刻，但身處日益友善的台灣社會，我們將心懷感激地攜手走過每一段風雨。" srcset="https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1.webp 1920w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-700x328.webp 700w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-300x141.webp 300w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-1024x480.webp 1024w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-768x360.webp 768w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-1536x720.webp 1536w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-370x173.webp 370w, https://iknowledge.info/wp-content/uploads/2023/07/2023PR3-1130-p1-1410x661.webp 1410w" sizes="(max-width: 1920px) 100vw, 1920px" />															</div>
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									<p><b>作者：柑子</b><br />發生年代：2021年 </p>								</div>
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									<p>熱戀期間生活總是充滿粉紅泡泡，瑣碎的數字、物品或日期都可以充滿紀念意義，街道上寒風再冷冽，牽手走起來都是如沐春風，窗外雨再大都是「紅燭昏羅帳」，渾然不覺無情的風雨即將從意想不到的方向襲來。</p><p>我自己有定期匿篩的習慣，與男友交往一段日子後，到了要匿篩的時間，我自己先行預約完成匿篩，男友卻幾次更改預約時段。剛開始我沒有多想，回想自己第一次預約匿篩時也躊躇忐忑了一陣子，最後硬著頭皮才完成匿篩，這樣的緊張與不安即使至今已平淡許多，也沒能完全習慣。幾週過去了，男友匿篩的事情不論我如何曉之以理、動之以情總是沒個結果，令我逐漸感到不安，直到某一天他忽然同意匿篩，我怕他反悔，用最快的速度預約最近的時段，終於把男友送進匿篩站，沒想到也順勢把這段感情推進了風雨之中。</p><p>匿篩結果男友是HIV陽性，必須掛號做進一步檢查，匿篩到門診確診這段時間對我們彼此都有些難熬，花前月下的甜蜜生活被哭泣、吵架與失眠取代，理智上知道當務之急是支持男友接受療程，也清楚自己沒有對男友過往生活置喙的權力與必要，然而尖刻的語調仍在爭吵時宣洩而出。現在回想起來，雖然自己有定期匿篩，但其實我並沒有認真思考過自己或伴侶如果是HIV帶原者，後續該如何處理與面對，我和男友對於HIV的理解都太過匱乏，幾乎可說是不知所措，還好台灣完善的醫療制度，以及多元的非政府組織，讓我們有機會繼續攜手前進。</p><p>男友在很短的時間內經由門診檢查後確診，並開始服用抗病毒藥物，我則開始參加PrEP計畫，何時抽血、何時回診、如何服藥都清清楚楚，跟我們混亂的心境相比，醫護人員的指示與建議更顯得井然有序。男友剛開始服藥時有些輕微的副作用，還好並未持續很久，很快地男友的病毒量從六位數字降到偵測不到的程度，CD4淋巴球數量也如願上升。我服用舒發泰<span style="color: #ff3300; font-size: 14px;">（註1）</span>後則幸運地沒有任何副作用，猶記得自己夜深人靜時曾拿出舒發泰仔細端詳，藥丸一側印著701，剛開始還以為是藥廠的訂價。從網路搜尋資料時得知有些人稱呼舒發泰為約炮丸，仔細想想這的確是它的功用之一，只是對我而言舒發泰有更重大的意義。</p><p>此後，我利用手機鬧鈴設定服藥時間，鈴聲總在固定的時刻響起。我與男友因工作緣故並不每天住一起，鈴聲響起時若男友在身邊，我們就停下手邊的事情吃藥，若男友不在身邊，便透過手機聊天與提醒對方服藥，眨眼間一千多個日子就這樣過去了。</p><p>雖然個管師不厭其煩地告訴我們HIV已經是可以控制良好的慢性病，但很多時候仍能感受到這個疾病並不見容於社會。男友會把黃卡藏到自己都忘記放在哪裡，我們費了一番心力才找到願意為男友拔智齒的醫師，有時也會因為一些新聞或他人的看法感到受傷。我們投入許多時間學習如何與HIV共處，過程中有賴露德協會、權促會等非政府組織的網站提供實用資訊，也幸得其中工作人員的協助，降低了HIV對日常生活的影響。</p><p>風雨過後我們的生活回歸平淡，HIV在日復一日的提醒鈴聲中逐漸融入日常，只是有些事情已經不再一樣，我和男友在大醫院熟門熟路地報到、批價、抽血、領藥，約會時鮮少選擇生食多的日本料理以避免無謂的風險，曾經不太會吞藥丸的我經過舒發泰的訓練，已經很少有吞不下去的藥。我們從這些瑣碎的小事逐漸累積與HIV平等共存的力量，也許未來仍存在不安與脆弱的時刻，但身處日益友善的台灣社會，我們將心懷感激地攜手走過每一段風雨。</p><p><span style="color: #ff3300;">註1</span>：舒發泰Truvada，藥品名，可作為「暴露愛滋病毒前預防性投藥」（PrEP），檢驗確認未感染愛滋病毒，經醫師評估開立處方服用，可預防感染愛滋。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-1273-days/">1273個日子</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>錯誤下美麗的相遇</title>
		<link>https://iknowledge.info/2023untold-encounter/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 23 Nov 2023 09:00:54 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17420</guid>

					<description><![CDATA[<p>我滑著手機交友軟體，看見一個交友自介，好奇心驅使下加入他的FB帳號，鼓起勇氣敲了臉書訊息給他：「Hi，請問交友軟體上的資料都是被盜用的嗎？」對方迅速回覆：「有些是真的，有些非本人的。」我繼續詢問：「因為我看到HIV...』</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-encounter/">錯誤下美麗的相遇</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1123-p2-q9z0e2t18exlw55saxdgdeoynfoxru198exrxc4rag.webp" title="2023PR3-1123-p2" alt="那一夜，我們聊了很多，就像是畢業旅行捨不得跟同窗好友道晚安的感覺，有很多內心的話想要跟彼此分享" loading="lazy" />															</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1123-p2-q9z0e2sjxoa1pq6hublxdkmbug2nsyk46hu99lwx3c.webp" title="2023PR3-1123-p2" alt="那一夜，我們聊了很多，就像是畢業旅行捨不得跟同窗好友道晚安的感覺，有很多內心的話想要跟彼此分享" loading="lazy" />															</div>
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									<p><b>作者：崇文魚讀月</b><br />發生年代：2021年</p>								</div>
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									<p>2015年因為治療菜花，在過程中同時得知自己確診HIV，或許當時剛好身邊也有朋友確診，抑或是自己對於HIV的了解已從社群網站上得到些微的知識，因此，聽到確診報告的當下，我內心並沒有天崩地裂的感覺。然而，在當時還沒出現愛滋科學新知 U=U 測不到就不會傳染<span style="color: #ff3300; font-size: 14px;">（註1）</span>，社會上仍存在著許多愛滋汙名與歧視，感染這件事情對我來說，讓我在心中掛念的重要事情，就是能不能找到一位伴侶好好走下去，擔心著HIV會變成一個未來感情關係的阻礙。 </p><p>輾轉難眠的夜裡，我滑著手機交友軟體，看見一個交友自介，好奇心驅使下加入他的FB帳號，鼓起勇氣敲了臉書訊息給他：「Hi，請問交友軟體上的資料都是被盜用的嗎？」</p><p>對方迅速回覆：「有些是真的，有些非本人的。」</p><p>我繼續詢問：「因為我看到HIV+，雖然我不知道你是不是，但覺得你的軟體自介，敢寫HIV及BBhi<span style="color: #ff3300; font-size: 14px;">（註2）</span>，讓我覺得你很勇敢，希望你別介意。」</p><p>小心地注意每個用詞，深怕不小心惹怒對方，沒想到對方說道：「呵呵，不會介意，我說實話……上面寫的都是真的。」</p><p>看到訊息的我彷彿找到與我一樣身分的人，興奮地拿著手機輸入著：「我喜歡你的誠實，以及正面看待HIV的態度。」</p><p>對方接著問我：「想問你為什麼看到positive會想要認識呢？」<span style="color: #ff3300; font-size: 14px;">（註3）</span></p><p>我也鼓起勇氣向對方坦白：「我在今年發現自己也是HIV，現在你是我第三個知道的朋友。」</p><p>那一夜，我們聊了很多，就像是畢業旅行捨不得跟同窗好友道晚安的感覺，有很多內心的話想要跟彼此分享，在對話結束前對方詢問我：「你有興趣知道你為什麼看到這個交友軟體自介？見個面吧！我說個故事給你聽。」</p><p>時間匆匆地來到約會見面的那一天，我坐在馬路旁的柱子上等待著對方到來，既期待又擔心對方見到自己會不會就轉身離去，不安的心情直到迷人聲音在耳邊出現才消失，他說：「Hi，你到囉，我們進去吧！」</p><p>我們來到一間酒吧，在吧檯旁看著他可愛的臉龐，聊著生活點點滴滴讓彼此更加認識。原來，對方剛結束了一段恐怖情人的關係，交友自介並不是他自己貼出來的資訊，而是其他人竊取他的資料，寫上了HIV+暴露隱私，並附上真實的姓名、地址，想要藉由愛滋的汙名毀掉一個人。聽他說著令人害怕難過的故事，想著有些人看見愛滋感染者就會很擔心跟他相處，更不要說會開啟聊天，建立一段新的關係，因為對疾病的汙名與不解，讓我們很難好好地去認識一個人。不知不覺地我將手放在他的手上，溫柔地說道：「謝謝你告訴我這些，從現在起你不是一個人了。」</p><p>這段關係陪伴著彼此至今來到第六年，時常朋友問我們如何認識彼此，我們兩個就會相視會心一笑地說：「這是一個很長的故事，準備好要聽了嗎？」這些年出現愛滋科學新知 U=U ，讓越來越多的感染者能鼓起勇氣公開說出自己的故事，感染者可以透過穩定的治療，持續向未來夢想前進，也更有勇氣與其他人交往發展情感關係，讓愛滋不是關係中的阻礙，而是提醒著我們可以讓愛無所畏懼。</p><p> </p><p><span style="color: #ff3300;">註1</span>：U=U，即Undetectable=Untransmittable，譯作「測不到（病毒）＝不具傳染力」。醫學研究證據顯示，穩定接受抗病毒藥物治療的愛滋感染者，血中的病毒量若持續六個月以上控制在小於200 copies/ml（每毫升200個複製體），稱作測不到（undetectable），達到測不到狀態的愛滋感染者，將不會透過性行為傳染愛滋病毒（untransmittable）。</p><p><span style="color: #ff3300;">註2</span>：BBhi，BB為Bareback的縮寫，意指不戴保險套性交；hi為「嗨」，意指使用娛樂性藥物助興。</p><p><span style="color: #ff3300;">註3</span>：Positive，此英文單字在此意指愛滋病檢驗結果呈陽性。</p>								</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-encounter/">錯誤下美麗的相遇</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>H與我之間</title>
		<link>https://iknowledge.info/2023untold-h-and-me/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 16 Nov 2023 09:00:03 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17421</guid>

					<description><![CDATA[<p>「中秋跟我一起回家烤肉，我的家人們都會一起⋯⋯」H先生在某個晚上不經意地說著。那瞬間，身為資歷將近十年HIV感染者的我，感到十分震撼並不可思議，我不禁回想感染初期直到現在的這些日子，從單身到有伴、從有伴到穩定，當中有太多無法預料的點滴，就這樣遊走在我與H之間...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-h-and-me/">H與我之間</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1116-p1-q9yy2qg798ucgu7yywgbaftmhihb9z61rwjw23pezs.webp" title="2023PR3-1116-p1" alt="「中秋跟我一起回家烤肉，我的家人們都會一起⋯」我從沒想過與H先生交往的我，能夠收到這樣的邀約。或許真相就是，我和H先生這對伴侶與一般人無異，我們都為了自己感情、工作、生活努力著，都得兢兢業業地取得這一切之間的平衡。" loading="lazy" />															</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1116-p1-q9yy2qfpyi6saf8oiaosalqzoiv1b3owpzgdedhkso.webp" title="2023PR3-1116-p1" alt="「中秋跟我一起回家烤肉，我的家人們都會一起⋯」我從沒想過與H先生交往的我，能夠收到這樣的邀約。或許真相就是，我和H先生這對伴侶與一般人無異，我們都為了自己感情、工作、生活努力著，都得兢兢業業地取得這一切之間的平衡。" loading="lazy" />															</div>
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									<p><b>作者：繁華</b></p>								</div>
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									<p>「中秋跟我一起回家烤肉，我的家人們都會一起⋯」H先生在某個晚上不經意地說著。</p>
<p>那瞬間，身為資歷將近十年HIV感染者的我，感到十分震撼並不可思議，我不禁回想感染初期直到現在的這些日子，從單身到有伴、從有伴到穩定，當中有太多無法預料的點滴，就這樣遊走在我與H之間<span style="color: #ff3300; font-size: 14px;">（註1）</span>。</p>
<p>「需要強制出境嗎？」因著辦理工作簽體檢時驗出HIV+時，這是我唯一問醫師的問題。然而，除了工作考量的問題之外，心中總有個聲音揮之不去：「我這輩子應該會一直單身下去⋯」是的，這個想法即便在成為感染者多年之後，依舊時不時地出現在我的腦海中。</p>
<p>「會一直單身下去⋯因為，我是HIV+⋯」</p>
<p>H就這樣如影隨形地伴隨著我，每每遇到互動不錯的對象，我總會先告訴對方：「有件事你先知道比較好，我是HIV+，如果你不介意我們再繼續互動吧！」這些年遇到的這些人，有些已讀不回、有些直接賞了個封鎖，也有些說著：「我不介意⋯」但之後就斷了聯繫⋯我自己也逐漸從傷心介意，逐漸習慣了H對我感情生活的影響：那種不被接納、被特殊看待，或是被視為需要逃離、警戒的情感互動。</p>
<p>「我是HIV+，如果你不介意我們再繼續互動吧！」那天我這樣告訴H先生。</p>
<p>「喔，有穩定吃藥嗎？」H先生問。</p>
<p>「有，穩定服藥並且病毒量測不到⋯」我回答。</p>
<p>「是吧，我不介意啊！就是生了個慢性病⋯」H先生這樣回應。</p>
<p>是的，在確認感染者身分的很多年後，我遇到了H先生，並開始交往。</p>
<p>很多朋友問我：「會為了什麼吵架？」「會因為HIV的感染狀態不同而吵嗎？」</p>
<p>H先生與我之間，與其他的伴侶一樣，通常都為了些不知道是什麼的生活瑣事而吵。例如：要吃麵？還是吃飯？你為什麼沒有順道幫我收衣服？幾百個日子過去了，H先生與我未曾為了感染者的身分吵架，反倒是為了這些說來都難為情的芝麻綠豆事而吵。</p>
<p>「中秋跟我一起回家烤肉，我的家人們都會一起⋯」我從沒想過與H先生交往的我，能夠收到這樣的邀約。或許真相就是，我和H先生這對伴侶與一般人無異，我們都為了自己感情、工作、生活努力著，都得兢兢業業地取得這一切之間的平衡。</p>
<p><span style="color: #ff3300;">註1</span>：感染者會簡稱HIV為H，減少身分曝光的可能。</p>								</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-h-and-me/">H與我之間</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>一身有愛，滋養我心</title>
		<link>https://iknowledge.info/2023untold-nourish-my-heart/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 09 Nov 2023 09:00:14 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17422</guid>

					<description><![CDATA[<p>當家人們一起圍爐，大快朵頤之時，我只能淺嘗則止，因為喉嚨異常疼痛，連吞嚥口水都十分困難，當時只覺得應該是感冒所引起。假期過後，我上網找到了一間聲譽不錯的耳鼻喉科去看診，醫生看到我喉嚨壁上長了「白色念珠菌」，很技巧地問我，最近是不是有發生不正常的性行為...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-nourish-my-heart/">一身有愛，滋養我心</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：狸貓</b><br />創作者</span><br /><a href="https://www.instagram.com/leemeowoh/?hl=zh-tw" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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				<div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a18d311" data-id="a18d311" data-element_type="column" data-e-type="column" data-settings="{&quot;background_background&quot;:&quot;classic&quot;}">
			<div class="elementor-widget-wrap elementor-element-populated">
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						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1109-p1-q9yxgb0u6k51fsssxpfsalko7j10lz4mcw5steylgo.webp" title="2023PR3-1109-p1" alt="在一起七年多，結婚兩年，我們用愛包容彼此，我何其有幸，上天給了我這樣一個既體貼又善良的另一半，用愛，滋養著我們之間的幸福。" loading="lazy" />															</div>
				</div>
				<div class="elementor-element elementor-element-e107ff9 elementor-invisible elementor-widget elementor-widget-image" data-id="e107ff9" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1109-p1-q9yxgb0cvthh9dtih3o9ari1ejeqn3nhaz2a5oqr9k.webp" title="2023PR3-1109-p1" alt="在一起七年多，結婚兩年，我們用愛包容彼此，我何其有幸，上天給了我這樣一個既體貼又善良的另一半，用愛，滋養著我們之間的幸福。" loading="lazy" />															</div>
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									<p><b>作者：順風</b><br>發生年代：2008年至今</p>								</div>
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									<p>民國97年農曆春節是我最難忘的假期，當時我二十九歲。</p><p>當家人們一起圍爐，大快朵頤之時，我只能淺嘗則止，因為喉嚨異常疼痛，連吞嚥口水都十分困難，當時只覺得應該是感冒所引起，忍耐個幾天，等診所恢復營業時再去就醫。</p><p>假期過後，我上網找到了一間聲譽不錯的耳鼻喉科去看診，醫生看到我喉嚨壁上長了「白色念珠菌」，很技巧地問我，最近是不是有發生不正常的性行為？我嘴巴說沒有，心裡卻猛然一震，難道一個月前的一次危險性行為留下了不該有的東西！醫生建議我到大醫院做檢查比較保險，只是去除念珠球菌是治標不治本的方法。</p><p>我懷著一顆忐忑的心，先到中山醫院做HIV匿篩，結果非陽性也非陰性，竟然測不出來！後來直接掛感染科李醫師的診，請他幫我看看是怎麼回事，又再抽了十二管血檢驗其他項目後，所幸一切正常，於是開始了投藥生涯。</p><p>當時我一次要吃三顆像善存這麼大顆的藥，還一天吃兩次。我不敢跟家人朋友說這件事，因為在他們眼中，我一直是很乖、很單純的，怎麼可能會跟愛滋劃上等號？所以我一直是偷偷吃藥。當時只想到我這一生完了，不知道剩幾年可活？常常吞藥時，眼淚也默默潸然而下。</p><p>初期，沮喪和負面情緒一直籠罩著我的生活，做什麼事都提不起勁。除了死亡陰影之外，還想到我的交友圈，因為不想傳染給其他人，所以，越是對他有好感的人，我反而離他更遠，逐漸成為一個感情絕緣體，注定一輩子孤獨。</p><p>後來，我才發現我大錯特錯！「無知」才是最大的恐懼。我上網找了很多愛滋病的相關資料，包括「帕斯堤聯盟」上的文章分享。原來，愛滋病就像高血壓或糖尿病一類的慢性病，只要固定投藥，我還是可以過著跟正常人一樣的生活。甚至有國外的研究指出，在固定性伴侶的情況下，一方維持病毒量在測不出的範圍，另一方感染的機率趨近於零！原來，我還是可以享受愛人與被愛的感覺。</p><p>約莫就在這時期，在聊天室遇到一個很談得來的朋友，見面之後更是無話不說。幾次約會下來，更加認為對方就是彼此的Mr. Right，於是，他提出交往的要求，我愣了一下，隨即告知我是HIV的帶原者。出乎我意料之外，他突然緊緊抱住我，說了我永遠不會忘記的話：「生命如此無常，你是如此脆弱，讓我好好照顧你，好嗎？」我點點頭回抱他，眼淚又再度潰堤。</p><p>在一起七年多，結婚兩年，我們用愛包容彼此，絕不吵隔夜架。他知道我CD4偏低，一直都在300多上下，他從不讓我熬夜工作，藉此保持規律的正常作息。他擅長廚藝，一天五蔬果是必備的。凡是太耗精神或體力的工作，他一概包攬。而且，每三個月回中山醫院找李醫師時，他也堅持陪同看診、拿藥，順便去做HIV的匿名篩檢。果然這七年多來，他一直維持陰性反應。</p><p>我何其有幸，上天給了我這樣一個既體貼又善良的另一半，用愛，滋養著我們之間的幸福。各位愛滋同志們，絕不要去放棄追求自己的真愛，我們能愛別人，當然更要愛自己，幸福掌握在自己的手裡。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-nourish-my-heart/">一身有愛，滋養我心</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>現在說，還來得及嗎？</title>
		<link>https://iknowledge.info/2023untold-in-time/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 02 Nov 2023 09:00:22 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17423</guid>

					<description><![CDATA[<p>二十年的時間是這麼如梭般過去了。每當我看到相關的新聞，我總又想起你，隨著你的樣貌、聲音浮現，不曾乾涸的愧疚也如潮浪拍打在心的礁岸。如今，我只能怯怯問你一句：這些年，你過的還好嗎？從小學五年級開始，我便注意著你。父親常在晚餐時提及你的優秀與桀驁，叮囑我身為老師的兒子可別輸給他的學生。</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-in-time/">現在說，還來得及嗎？</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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															<img loading="lazy" decoding="async" width="600" height="600" src="https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people.jpg" class="attachment-full size-full wp-image-17655" alt="" srcset="https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people.jpg 600w, https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people-100x100.jpg 100w, https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people-300x300.jpg 300w, https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people-150x150.jpg 150w, https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people-370x370.jpg 370w, https://iknowledge.info/wp-content/uploads/2099/11/2023PR3-1102-people-90x90.jpg 90w" sizes="(max-width: 600px) 100vw, 600px" />															</div>
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									<span style="color: #e8d29e;"><b>發聲者：哈哈台旁白哥RJ</b></span>
<a href="https://www.instagram.com/rueijie/" target="_blank" rel="noopener">➞ 發聲者連結</a>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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				<div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a18d311" data-id="a18d311" data-element_type="column" data-e-type="column" data-settings="{&quot;background_background&quot;:&quot;classic&quot;}">
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						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1102-p1-q9ywn7wmp4bm671ss4te4xt6gae4f5nn0xew763608.webp" title="2023PR3-1102-p1" alt="二十年過去了，我早年逾不惑，想來更能成熟面對那時候脆弱到稍一輕觸便解體的你，可逝去的時光半點不由人，無法讓我任性地回到轉捩之夜。希望你至今仍好，仍如從前一笑天地生。" loading="lazy" />															</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1102-p1-q9ywn7w5edo1zs2ibj1v53qjnaruga6hz0bdjfvbt4.webp" title="2023PR3-1102-p1" alt="二十年過去了，我早年逾不惑，想來更能成熟面對那時候脆弱到稍一輕觸便解體的你，可逝去的時光半點不由人，無法讓我任性地回到轉捩之夜。希望你至今仍好，仍如從前一笑天地生。" loading="lazy" />															</div>
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									<p><b>作者：凌沖</b><br>發生年代：1990～2000年</p>								</div>
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									<p>二十年的時間是這麼如梭般過去了。每當我看到相關的新聞，我總又想起你，隨著你的樣貌、聲音浮現，不曾乾涸的愧疚也如潮浪拍打在心的礁岸。如今，我只能怯怯問你一句：</p><p><i>這些年，你過的還好嗎？ </i></p><p>從小學五年級開始，我便注意著你。父親常在晚餐時間提及你的優秀與桀驁，叮囑我身為老師的兒子可別輸給他的學生，你就更成為我眼中凝注不放的一根釘。雖然是鄰班的一牆之隔，可我盯著你的目光常在你不經意的回首下，被你攫個正著。你坐在教室裡埋首書頁、穿梭躲避球比賽拋擲的球影中、低頭任水龍頭淋漓你的髮與頸，都能在某一瞬挪眼回視我，讓兩造目光在虛空撞出無以名狀的什麼。然後看是誰先撇頭認輸，而那往往是我。即使多次的以眼神交會試探。小學最後那兩年，自始自終，我從沒和你說過一句話。</p><p>國中入學第一天，發現我倆分至同班，座號緊鄰，不出幾日，我們的關係親密，如糖蜜成天膠黏在一塊兒。你的開朗燦爛了我的生活，讓每一個上學日都翹首以待。話題永遠聊不盡，從電玩《仙劍奇俠傳》的攻略，到三角函數與方程式的解題，話匣子難以闔上，必須以夜夜的電話線續接白日的未完情事。不知不覺中，你成為我的太陽，我只是你的恆星，依循著你的軌道生活，繞著你而轉。就在某一個夜不成眠的逢魔時刻，我天靈蓋一開，方才頓悟，我愛上你了。</p><p>我否認這樣的情愫，繼續飾演知心密友一角。冥冥之中為我們規劃好的劇本，讓我倆在兩次聯考的篩揀下，都就讀同一所高中與大學。這段期間，你的身長抽高，可愛的娃娃臉添了分明的稜線，隱有英氣勃發。你的異性緣好到我在你面前差點掛不住身為好友調侃時應有的笑臉，對一隻隻引來的蜂蝶壓抑如火山蓄積的羨慕、忌妒，咬牙做個行禮如儀且得體的你的兄弟。是啊，我怎麼敢心直口快地對你說我愛你呢？所幸從未有任一小蟲沾染我眼底最獨一無二、最美的這朵花。有時，問起你拒絕的緣由，你回眸定定看我的目光，讓我像小時候又先認輸地撇轉凝視你的瞳。當你欲語還休時，我也在欲語還休前先一步岔開話題。直覺告訴我，將啟的答案會是禁域。</p><p>大學的青春如蟬鳴嘈嘈，放肆喧嘩它無止境的能量。你在籃球隊浸濡汗水，成為眾人焦點時，我則在稍遠之處的升旗台邊練習長笛，偷看著你過人的英姿與俐落的拉竿，心的節奏隨著球場周遭的歡呼聲起伏。那時我想，如果告訴你，你最好的朋友愛上了你，我們的關係，是不是會就此走樣？會不會多年的情比金堅，一夕間化作夢幻泡影？</p><p>一夜，正在宿舍房內玩電玩《世紀帝國》，殺伐決斷間，你突然來找我，臉色不同尋常。我按捺下惴惴的心，同你去便利商店買了幾瓶啤酒，聽憑你領我窩在司令台上喝將起來。星子疏離，夜風薰暖，你只是悶喝，並不多語，攀上臉頰的酡紅讓我心驚，直拉你手，連忙問到底出了什麼事。你突然倒向我，頭抵在我胸口上，就這麼嗚咽地哭起來。</p><p>到底出了什麼事，你說啊？我著實嚇著了，從未看過你如此脆弱的模樣，只能輕摟著你拍背安撫。你的淚水濕透我的衫，髮梢的汗香讓我心慌，手足無措地聽你字不成句，說起令你我都難以承受之事。</p><p>你說，你很早就感應到我對你的心意了。</p><p>你說，你怕誤判而讓關係變質，不敢貿然回應。</p><p>你說，接觸網路後，你踏足男體的圈子，耽溺沉淪。</p><p>我想像你橫陳在多人運動後，一具又一具油光水滑的肉身其間，你在我面前衣蔽下的繾綣遐想，全曝光於慾望的汁水下。那咫尺之前我渴望占據擁有戀執的，悉數與我擦身而過，不屬於我。</p><p>我才正想開口問你，那你願意和我在一起嗎？話尚未脫口，你卻快我一拍，說出最後一句話。</p><p>你最後說，你得了愛滋，不知從哪個趴場哪個人……。</p><p>千分之一秒的反射，讓課堂上長年灌輸洗腦的愛滋患者千瘡百孔、潰爛不堪的畫面充斥腦海，耳畔迴響的是父親嚴詞咄咄地唾棄愛滋患者咎由自取的語出不屑，明明已是開化的二十一世紀，我卻仍深深對未知、對疾病萌發的無以為力感到驚懼。也是在這千分之一秒，輕拍你背的手莫名停滯在半空，身子不由得向後縮移了半分，讓你的頭臉在無倚靠之處。即使剎那後我想佯裝先前的親暱，你也敏銳察覺到，彼此之間難以言喻卻又最緊密微妙的羈絆，是再也回不去了。</p><p>你只稍稍回頭，用紅絲滿佈的雙眼，怔怔看著我，眼神宛如幽幽低語：「原來，連你也怕我。」</p><p>但這次，我的眼卻連認輸的本錢都沒有，八方四界無處可逃。</p><p>那夜後，我再也找不著你。校園尋不得你的影跡，手機只是嗶聲後請留言。我好害怕，理智與情感膠著拔河，根本不知怎麼做才是「對的」。沒多久，輾轉得知你休學，我直奔你家，可你父母阻攔在前，淡漠的面色下透著悲憤，以你身體不適回拒我與你相見。話語中沒表達的似乎是，他們的孩子走到這步田地，我也有責任。</p><p>是的，我也有責任，所以才想去彌補、去化解橫亙你我的心有千千結，但不出一年，你家的陽台前掛起招租看板，我只能悵悵然望著徒留下的人去樓空，收拾遺憾。</p><p>二十年過去了，我早年逾不惑，想來更能成熟面對那時候脆弱到稍一輕觸便解體的你，可逝去的時光半點不由人，無法讓我任性地回到轉捩之夜。希望你至今仍好，仍如從前一笑天地生。若在遺憾的結尾再狗尾續貂，我想對你說出二十年前來不及說的話：</p><p><i>我一直愛著你，無論你會變得如何，我都好愛你。 </i></p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-in-time/">現在說，還來得及嗎？</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>沒能給的擁抱</title>
		<link>https://iknowledge.info/2023untold-too-late-to-hug/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 26 Oct 2023 09:00:32 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17372</guid>

					<description><![CDATA[<p>看著K君淡淡地說出自己是愛滋感染者的表情，我不質疑，反而很篤定地相信他所言不假。雖說相信，但心裡的震驚也難以平復，畢竟第一次近距離接觸，他又如此誠懇可親，毫不掩飾隱瞞，我便按捺蠢蠢欲動的排斥感，細細聆聽他娓娓道出自己一段不堪的人生歷程...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-too-late-to-hug/">沒能給的擁抱</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：Ryder</b><br />平面模特兒</span><br /><a href="https://www.instagram.com/ryder_shao/" target="_blank" rel="nofollow noopener">➞ 發聲者連結</a></p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1026-p1-q9yw671ux50nwfs06rwmz8gn52at0i2nco2barbup4.webp" title="2023PR3-1026-p1" alt="和K君相識，是在一場賓主盡歡的宴會上，飲了些酒，微醺的我們相談甚歡，直到散場仍意猶未盡，於是續攤到了間酒吧，延續未完的話題。" loading="lazy" />															</div>
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									<p><b>作者：黑大帥</b><br />發生年代：2010年</p>								</div>
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									<p>和K君相識，是在一場賓主盡歡的宴會上，飲了些酒，微醺的我們相談甚歡，直到散場仍意猶未盡，於是續攤到了間酒吧，延續未完的話題。</p><p>「我有H。」這是他在酒吧的開場白。<br />「什麼？」我沒聽懂。<br />「HIV。」他更進一步地說明。</p><p>看著K君淡淡地說出自己是愛滋感染者的表情，我不質疑，反而很篤定地相信他所言不假。雖說相信，但心裡的震驚也難以平復，畢竟第一次近距離接觸，他又如此誠懇可親，毫不掩飾隱瞞，我便按捺蠢蠢欲動的排斥感，細細聆聽他娓娓道出自己一段不堪的人生歷程⋯⋯。</p><p>「我有過一段很美滿幸福的婚姻，他是我大學直屬學妹，我是他的初戀。」K君的聲音從他吐出的煙霧穿透而來。<br />「我們在畢業前夕去登記結婚。」<br />「我前妻直到現在還不知道我為什麼和她離婚，我也不打算讓她知道。」他捻熄了香菸，啜了一口酒。</p><p>我靜靜聆聽他說著自己的故事。他彷彿在自言自語，我是唯一的聽眾，而他說的情節，深深吸引著我。</p><p>「在結婚之前，我的社交生活很複雜。你所能想像到的，我幾乎玩過；你想像不到的，我也是箇中高手。」<br />「這些荒唐的曾經，我前妻一無所知。」K君說。<br />「我會染上HIV，大概也是從那些危險的、挑戰道德極限的性遊戲得來的。」K君的眼神變得很無力。<br />「登記結婚當天，我們決定去捐血紀念這有意義的時刻。結婚後沒幾天，我便接到通知，說我可能染上愛滋病，叫我停止任何性活動，他們馬上安排我去複檢。」K君停頓下來，又燃了根菸，朝我丟出一個苦笑。<br />「等候結果那幾日，其實我心裡早就有譜。確診之後，我只跟我前妻說了一句話，她就跟我離婚了。我叫她成全我，簽字離婚，她回答好，但簽字後要告訴她原因。」<br />「我欺騙了她，簽字後我就從她的世界消失了。」</p><p>那夜談話結束，我們不發一語地走在深夜街上，直到他坐上計程車按下車窗對我說：「好好珍惜享受你的人生。」然後，我才恍然大悟，他只是需要一位能陪伴、傾聽的人而已，我很懊惱沒能給他一個溫暖的擁抱，假如能再遇見，我會給他一個毫無隔閡的擁抱，並且為他加油。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-too-late-to-hug/">沒能給的擁抱</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>面對自己，每一步都是超越</title>
		<link>https://iknowledge.info/2023untold-surmount/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 19 Oct 2023 09:00:00 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17371</guid>

					<description><![CDATA[<p>我的鄰居有愛滋。我記得二十年前，我們兩個常一起待在他家打電動，那時的他，既內向又膽小。有時我們看恐怖片，他是那個愛裝作不害怕，其實卻不敢看的人，當然，這些印象在我多年後又遇見他時都徹底改變了。他健身、開朗、舉止談吐得宜，從有點普通甚至差勁的小男孩，成長為一個正向又積極的男子漢..</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-surmount/">面對自己，每一步都是超越</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：那那大師</b><br />音樂型 YouTuber</span><br /><a href="https://www.instagram.com/tinana_master/" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1019-p1-q9l8w9xd34brw7kajfsthpr5zby6dl72rhon2cf3fs.jpg" title="2023PR3-1019-p1" alt="我的鄰居有愛滋。 我記得二十年前，我們兩個常一起待在他家打電動，那時的他，既內向又膽小。有時我們看恐怖片，他是那個愛裝作不害怕，其實卻不敢看的人，當然，這些印象在我多年後又遇見他時都徹底改變了。" loading="lazy" />															</div>
				</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1019-p1-q9l8w9wvsdo7psl02u1ahvoj6cbweppxpkl4em798o.jpg" title="2023PR3-1019-p1" alt="我的鄰居有愛滋。 我記得二十年前，我們兩個常一起待在他家打電動，那時的他，既內向又膽小。有時我們看恐怖片，他是那個愛裝作不害怕，其實卻不敢看的人，當然，這些印象在我多年後又遇見他時都徹底改變了。" loading="lazy" />															</div>
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									<p><b>作者：佛精</b><br />發生年代：2010年</p>								</div>
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									<p>我的鄰居有愛滋。</p><p>我記得二十年前，我們兩個常一起待在他家打電動，那時的他，既內向又膽小。有時我們看恐怖片，他是那個愛裝作不害怕，其實卻不敢看的人，當然，這些印象在我多年後又遇見他時都徹底改變了。他健身、開朗、舉止談吐得宜，為什麼會有這麼大的變化？從一個有點普通，甚至差勁的小男孩，成長為一個正向又積極的男子漢。以我自己的經驗來說，在我創業的路上是充滿痛苦的，我從二十歲就加盟便利商店做起小生意，至今開了自己的顧問公司提供市場諮詢服務，一路上這個不懂、那個不會，自然受到許多白眼與不公義，但是「超越苦難」的心願使我不斷往前，在這麼多年後，我確實會說，那些苦難成就了我。如果沒有超越的心，沒有遇見苦難，至今我可能還是一個弱不禁風，遇上困難就不知所措的小鬼頭。那麼，我的那位童年鄰居又是怎麼提升自己呢？他超越了什麼苦難，而成為了一個正向又開朗的人呢？</p><p>「哦！你有愛滋？」<br />「對！」<br />「哦！好。」</p><p>這就是我們那時候的對話。時間回到我十八歲，那時我剛放棄警專入學資格，沒考大學又放棄當警察，沒事做的我，自然就先去超商打工，再看看之後的日子打算做些什麼。大夜班的薪水高，客人又少，我便在自家附近的便利商店做起大夜班收銀員。</p><p>「歡迎光臨！」正當我一如往常地重複口號，回應打開的電動感應門旋律時，一個外表健康強壯，臉上掛著陽光型男笑容的人對我打了個招呼。</p><p>「咦！你怎麼會在這？」<br />「很顯然，我穿著便利商店的背心，站在店裡喊著歡迎光臨，這不是在打工是在做什麼呢？」</p><p>我像往常一樣以吐槽的口吻，回覆這位多年不見的老朋友，一來一往也聊得挺來，畢竟那時候我們也都仍是剛成年步入社會的階段，一切事情對我們來說都還很新鮮。倒是多年不見的鄰居，談吐略顯溫和老氣，我記得他大我一歲，多一年的經歷，就讓同一個社區長大的孩子差這麼多嗎？在我不禁暗自疑惑時，他問我當兵了沒？那時候我也正因為等不到兵單，無法確定要往哪個方向長期發展，畢竟不能到別人公司做事才學習到一半，就突然走人去當兵一整年吧！</p><p>雖然男人當兵的趣事總是聊不完，這話題一旦展開就沒完沒了，然而我們兩個都沒當兵，一個是還沒收到兵單、一個是不用當兵。「嗯？為什麼你不用當兵？」正當我這麼隨口問問的時候，他從皮夾拿出了一張小卡片，我接過卡片來看。</p><p>「嗯⋯⋯人類免疫⋯⋯哦！你有愛滋？」<br />「對！」<br />「哦！好。」</p><p>現在回想起來，那是一個驚奇的夜晚。從小就立志當警察的我，剛放棄了入學資格，跑去做時薪一百元的大夜班店員，在這樣的夜晚我遇到多年不見的鄰居朋友，他一改過往形象，成了一個健身型男，我與他一邊聊天、一邊拖地掃地，我在空閒之餘去抽菸吹風，他則告訴我他有愛滋不用當兵，而且還是他其中一任男朋友傳染給他的⋯⋯嗯？好吧！你是同志，今晚還有什麼可以讓我感到訝異的，全都來吧！</p><p>只能說人真的不要鐵齒，我一直認為自己說話已經很狂了，通常聚會聊天時，我都是語出驚奇、故事令人突破三觀的那個，果然，一山還有一山高，我這位老朋友與我未見多年，不僅一見面就出櫃，還鉅細靡遺地敘述他是如何發現自己是同性戀，第一次性交的感覺⋯⋯等等，我一邊驚呆了地抽著菸、一邊訝異於這個老朋友能對我如此侃侃而談，真是心胸開闊、不怕世人成見的成熟呀！</p><p>「其實面對他，就接受得了，接受了，就放下了，沒什麼好在意憂心的。」這樣子的體悟，我在二十八歲進監獄時才有所體會。二十四歲的時候，我因為種了一株大麻而被判刑四年有期徒刑，現在算算日子再過一個月就要報假釋了，不知道我那些老同學、鄰居、朋友們又經歷了哪些故事呢？那些好的事、壞的事，在超越以後，我們又會怎麼看待自己？怎麼看待世界呢？</p><p>時至今日，一旦障礙苦難出現，我總是想起過往的朋友們是如何突破自己，戰勝困境，那股超越的力量就在自己身上。你只要在困境出現的時候，面對他、接受他、放下他，多年後再回頭看看自己，會發現已經向前走了多遠、多久。我們從來不被世界打敗，因為面對自己，每一步，都是超越。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-surmount/">面對自己，每一步都是超越</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>禁忌之愛</title>
		<link>https://iknowledge.info/2023untold-forbidden-love/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 12 Oct 2023 09:30:47 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17370</guid>

					<description><![CDATA[<p>阿義是我出社會工作的同事，是一位專業的水電師傅，領有國家發的乙級證照，為人誠懇，工作技術層面不藏私，所以在工地同事間有好人緣。彼時跟著他學藝之外，他不為人知的一面我也一併傳承，特別是對夜生活的見多識廣，他如識途老馬般領著我夜夜遊歷，因是初嘗溫柔鄉滋味，我倒也樂此不疲...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-forbidden-love/">禁忌之愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：潤滑液男孩</b></span><br /><a href="https://www.facebook.com/wetboyforever" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><b>作者：阿瑞</b><br />發生年代：2010年</p>								</div>
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									<p>愛，有很多種形態；<br />愛，是每一個人賴以為生的力量來源。<br />但有一種愛，是我見過最美、最危險的真實存在——禁忌之愛。</p><p>阿義是我出社會工作的同事，是一位專業的水電師傅，領有國家發的乙級證照，為人誠懇，工作技術層面不藏私，所以在工地同事間有好人緣。彼時跟著他學藝之外，他不為人知的一面我也一併傳承，特別是對夜生活的見多識廣，他如識途老馬般領著我夜夜遊歷，因是初嘗溫柔鄉滋味，我倒也樂此不疲。</p><p>那些時日其實很糜爛，工作只為餬口享樂，毫無規劃可言，月光族大概也就這個樣。但我好奇的是，每次我們出去尋樂子，阿義都僅止於飲酒歡樂，身邊也都帶上他的紅顏知己——麗姐。他們很外向，一起上聲色場所能玩得十分盡興，不過男的對18禁只會眼觀，女的則會跟著我們品頭論足，起初我覺得怪，久了也就習慣了麗姐的存在和參與。</p><p>我曾質疑麗姐為何如此善解人意、寬宏大氣，阿義告訴我，她曾經是酒店紅牌，所以對那些小姐的把戲瞭若指掌，這也是他不敢造次的原因之一。有次酒後，阿義談興濃厚，他緩緩地道出一段不為外人知的隱情⋯⋯。</p><p>「大概是七年前，我在一場朋友的婚宴上認識了她，而我那朋友的老婆，先前的職業也是酒店小姐，朋友去捧場喝出感情，就把她娶回家。」</p><p>「因為知道朋友妻的職業，所以在那場婚宴上我就沒問阿麗在哪高就，但我們相談甚歡，她也不避諱自己的職業，甚至散場後，她還約我續攤到她上班的酒店繼續聊，繼續喝。」</p><p>「那天我們就去汽車旅館，她跟我說自己是HIV的帶原者，叫我考慮清楚。我記得當時告訴她，說我這輩子不打算娶妻生子了，如果能有一個知心人相伴一生，我就無所求了，我不知道會不會愛上妳，但我喜歡妳。」</p><p>阿義說的這段曾經，是虛是實我並不清楚，但我知道他們都是愛滋病感染者；我也相信阿義對麗姐的情感真實永恆，他們的愛震撼了我，每次想起他們，我心中總會有淡淡的憂傷，但願他們能一直幸福下去，就像阿義的口頭禪：「人生得一知己，夫復何求。」</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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					<a class="elementor-button elementor-button-link elementor-size-sm" href="https://linktr.ee/the_untold_hiv" target="_blank">
						<span class="elementor-button-content-wrapper">
									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-forbidden-love/">禁忌之愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></content:encoded>
					
		
		
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		<item>
		<title>為愛發聲</title>
		<link>https://iknowledge.info/2023untold-speak-for-love/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 05 Oct 2023 09:30:09 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17309</guid>

					<description><![CDATA[<p>我們的認識來自一場偶然的相遇，茫茫人海中，相遇即是有緣，幾次的聚會後，雙方留下聯絡方式開始交談，天南地北、一路無所不談，也會時不時地相約出來，那時才知道她有一個女兒，但生父卻射後不理，讓她自己一個人獨自扶養，她向我傾訴兩人的交往過程...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-speak-for-love/">為愛發聲</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：Teacher Shen 沈老師</b></span><br /><a href="https://www.youtube.com/@teachershen" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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				<div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a18d311" data-id="a18d311" data-element_type="column" data-e-type="column" data-settings="{&quot;background_background&quot;:&quot;classic&quot;}">
			<div class="elementor-widget-wrap elementor-element-populated">
					<div class="elementor-background-overlay"></div>
						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1005-p1-q9l6tnimim6a6nyga6l2jjns83r5amy7u56xhj29ew.jpg" title="2023PR3-1005-p1" alt="對於愛滋一事，許多人看到這幾個字，下意識是恐慌、想遠離有此症狀之人，但了解其中的原因後，看法也能有所改觀，人生中形形色色之人那麼不計其數，我們不能用異樣的眼光對待。" loading="lazy" />															</div>
				</div>
				<div class="elementor-element elementor-element-e107ff9 elementor-invisible elementor-widget elementor-widget-image" data-id="e107ff9" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-1005-p1-q9l6tni57viq08z5tktjjpl5f44vbrh2s83etsuf7s.jpg" title="2023PR3-1005-p1" alt="對於愛滋一事，許多人看到這幾個字，下意識是恐慌、想遠離有此症狀之人，但了解其中的原因後，看法也能有所改觀，人生中形形色色之人那麼不計其數，我們不能用異樣的眼光對待。" loading="lazy" />															</div>
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									<p><b>作者：楊恕皓</b></p>								</div>
				</div>
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									<p>對於愛滋一事，許多人看到這幾個字，下意識是恐慌、想遠離有此症狀之人，但了解其中的原因後，看法也能有所改觀，人生中形形色色之人那麼不計其數，我們不能用異樣的眼光對待。佛說：「眾生皆平等。」或許當事人也不願意成為感染者，只是有些行為的發生，才造成人們對他敬而遠之，而我的人生中就有一位這樣的朋友。</p>
<p>我們的認識來自一場偶然的相遇，茫茫人海中，相遇即是有緣，幾次的聚會後，雙方留下聯絡方式開始交談，天南地北、一路無所不談，也會時不時地相約出來，那時才知道她有一個女兒，但生父卻射後不理，讓她自己一個人獨自扶養，她向我傾訴兩人的交往過程，從平淡的情緒瞬間轉化成悲憤。這時才知道她的前男友從前性生活糜爛，每天換不同的女生，並且都是危險性行為，結果染上愛滋，卻都沒有告訴那些性伴侶，直到我朋友懷孕做檢查，才知道自己也染上了愛滋。當時的她好想結束生命，只是肚中的孩子是無辜的，那時想到小孩生下來可能就要服用一些藥物，身為母親的她於心不忍，但最終她還是把小孩生下來，小孩也幸運地沒有受到感染。</p>
<p>聊著聊著，她告訴我，從來沒有人想聽她傾訴，連家人也對她不諒解，怪她不潔身自愛。我只能安慰她，人生之中不如意十之八九，遇到了就勇敢面對，想辦法解決，這才是最好的辦法，逃避無法解決任何事情，只是讓事情更複雜而已。後來我們有持續聯絡，她也會告訴我她的近況，小孩子的成長如何，使我對愛滋有更深入的了解。雖然聽到她有愛滋的當下，我一度想離開，但了解之後，我更想與她成為朋友，人生中有許多的人事物，這些都會是我們成長的經驗。 </p>
<p>今天如果角色對調，任何人都不想遇到這種事情，沒辦法改變的，就坦然接受。每個人的生活方式不同，只要過好自己的生活，才是根本之道。了解後，發現其實愛滋並不可怕。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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					<a class="elementor-button elementor-button-link elementor-size-sm" href="https://linktr.ee/the_untold_hiv" target="_blank">
						<span class="elementor-button-content-wrapper">
									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-speak-for-love/">為愛發聲</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>生命的意義</title>
		<link>https://iknowledge.info/2023untold-meaning-of-life/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 28 Sep 2023 09:00:49 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17369</guid>

					<description><![CDATA[<p>我們自小就在眷村一起長大。我們的父親都是剛正不阿的軍人，所以有著類似的家庭教育。我們同年紀且比鄰而居，求學過程中時常同校，也常同班。許許多多的共同點，使得我們成了刎頸之交。母親曾打趣說過，她懷我的時候，其實雙方家長都講好要指腹為婚了呢！哪知道生下來兩個都是男孩...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-meaning-of-life/">生命的意義</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：拿拿摳</b><br />厭世甜點店主持人</span><br /><a href="https://www.youtube.com/channel/UChDYtWoZDndUFoVSyEzx_og" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><b>作者：螳螂</b><br />發生年代：1970年至今</p>								</div>
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									<p>I had a friend.</p><p>我們自小就在眷村一起長大。我們的父親都是剛正不阿的軍人，所以有著類似的家庭教育。我們同年紀且比鄰而居，求學過程中時常同校，也常同班。許許多多的共同點，使得我們成了刎頸之交，還真的效法電視、電影的結拜情節，義結金蘭。母親曾打趣說過，她懷我的時候，其實雙方家長都講好要指腹為婚了呢！哪知道生下來兩個都是男孩……。</p><p>我們原本同班，直到國二時學校依課業成績分班。很幸運地我被分到了升學班，而他則很倒楣，因為漏抄一題選擇題，導致錯了一排答案，結果被分到放牛班。我們才依依不捨地結束同班同學的關係，自此也走向截然不同的人生旅程。誰叫他笨到連偷看都會看錯……但我們仍是差點指腹為婚的好鄰居，更是一起燒過黃紙的結拜兄弟！這是絕對不會改變的情誼。</p><p>說真的，小時候一直很慶幸有這個兄弟。是他讓我在學校裡不會被壞學生欺負，也不用交保護費。因為校內收保護費的壞學生就是他，雖然我的家庭作業時常要寫兩份就是了。但往好處想，這或許也就是我的成績越來越好的原因吧？關於這點，說不定還應該要感謝他呢！</p><p>他的成績每況愈下。和成績成反比，他的惡名漸漸地更加響亮。順道一提，他被伯父用皮帶抽打的哀號聲，也「更加響亮」了！哈哈哈——誰讓我們仍是鄰居，只要隔壁有什麼風吹草動，都聽得一清二楚；只要他被教訓，隔天早上就會被我消遣。校園內耀武揚威、不可一世的他，與向我低聲下氣、苦苦哀求不要將他糗事宣揚出來的他，反差真的好大呀！即使如此，回想起他那只有我見過的萌樣，仍令我忍俊不禁。</p><p>聯考後，我考上了公立高中要離家住校。他則放棄升學專心去混黑社會。離家時，他當然有來送我，並千叮嚀萬交代：「如果被人欺負，就直接嗆我的名號，說螳螂是你兄弟！」</p><p>不得不說，我還真的嗆過他的名號，他也真的帶過一群喇叭都改裝成黏巴達音樂的豪邁125飆車族，到我就讀學校的校門口堵霸凌我的學長們。很和平地，學長們老實安分得像綿羊般，乖乖坐上那一票飆車族排氣管拔掉消音器的改裝機車呼嘯而去。之後，學長們在校園內遇到我，不是快速轉身消失，就是肅立低頭不願直視我的臉，搞得我很尷尬，彷彿我才是大壞蛋似的……但好歹平安度過了高中三年，全都是拜我兄弟螳螂所賜。</p><p>之後有問過他，那天到底帶學長們去哪兒「兜風」？可他只是一臉壞笑，叫我認真把書給讀好，其他就別多問了，裝得一副很高深莫測的跩樣，真的很欠揍！</p><p>大學後，兩家人都搬離了眷村。伯父因為癌症過世，過不久便聽聞他染上了毒品海洛因，使我非常擔心。可無論我怎麼call他的BB-call，他都不回，透過友人也遍尋不著，只轉達了他的隻言片語。但仍是那些老話，叫我認真把書給讀好，其他就別多問了……。</p><p>數年後，我大學畢業，有了穩定的工作，與他再見面卻是在監獄的會客室。他先是拒絕我七次，到第八次才肯見我。肯見我的理由，是因為我的固執更甚於他，而他在高牆內已是無處可躲我。除此之外另個理由，是他有事要拜託我。他說我是他這輩子認識最久，也是書讀最多的朋友，希望我把他的故事寫成書，幫助有緣閱讀的人能夠懸崖勒馬、遠離毒品，我回答他：「一、你去死啦！我才不是你的朋友，我是你燒過黃紙的兄弟！二、你去死啦！書讀得多就會寫書是吧？你電影不也看得很多，幹嘛不把你自己的故事拍成電影算了！三、你去死啦！吸毒就吸毒，幹嘛要躲我？我又不會看不起你！害我很擔心你……」好難得他被我罵竟然沒有反駁，就靜靜地聽我把怨氣吐完，臉上曾經熟悉的壞笑全被苦笑取而代之。他說：「我可能真的快死了……因為施打毒品時共用針具，感染了愛滋病……」</p><p>晴天霹靂完，接下來便是無盡的沉默……直到會客窗切斷通話、鐵捲門放下，我仍然無言以對……。</p><p>藉著要幫他出書的理由，我陸陸續續還去見過他八次，聽著他訴說這些年發生的故事。忍住了無數次的淚水，卻忍不住泛紅的眼眶，可是說實在的，故事不外乎就是——男主角的父親罹癌臥病在床時，他才知道父親以前打罵他是因為愛他、是因為恨鐵不成鋼，又不懂得該如何教育孩子。甚至彌留之際做父親的，還念念不忘著向不肖子鄭重道歉……父親往生後，男主角走不出低潮的情緒，想利用毒品來度過失魂落魄的悲傷階段，不過後來轉念決心要發憤圖強、改邪歸正。沒料到反被毒品控制，不由自主，共用針具染上了愛滋……。</p><p>之所以能感動我，牽引我的情感，使我悲傷，是因為認識故事中的人物，且與他們有著深厚的感情。但真要寫成書去感召其他的迷途羔羊，幫他們迷途知返，我絕不認為自個兒有這麼大的能耐。</p><p>就在第九次去聽他說故事時，獄方告訴我他已經出監了……什麼跟什麼！為什麼我事先都不知道？為什麼他不讓我來接他？然後像電視演的，弄個豬腳麵線給他吃、家門口擺個火爐讓他跨、幫他接風洗塵之類的……心中一陣強烈的不安，果然這次任憑我再怎麼找也找不到他，更得不到半點消息……。</p><p>約莫個把月後，在報紙上看到了更生人出獄後，在公園廁所內施打明顯過量的海洛因致死的報導……我從小到大最信仰的守護神就這麼淒涼地殞落了。我清楚他粗中有細的個性，這個「意外」應該不是「意外」，也回想起他說過不願因愛滋病發而離世。這下，我什麼都明白了。</p><p>再後來，我也因為非毒品的刑事案件入獄服刑，所以自然沒有機會幫他完成「將他的故事寫成書」的遺願。沒想到反而在獄中獲得了此次的徵稿機會。我想，以他的個性應該是等得不耐煩在催促我、在製造機會了吧！那好，既然被趕鴨子上架不寫不行，不如就按照我的意思自由發揮吧！</p><p>自小，他都是一副玩世不恭、趾高氣昂、逞兇鬥狠的狂放性格。「流氓」這個職業，完全就是為他而設計的。除了過世的伯父以外，還真沒看過他怕誰。實在想不出除此之外，他還能勝任什麼正經工作。若非毒品染病，現今社會上會多一個有正義感的大尾流氓也說不定。</p><p>但是，就在我去監獄會客室聽他講故事的那段期間，竟然不可思議地發現，他其實也很適合當個「哲學家」、「宗教家」，或是「詩人」！即便是我的守護神，當他站在死神面前，會產生多大的化學反應，著實讓人難以置信。</p><p>他曾問我，又像在自言自語自思索：輪迴真的存在嗎？張飛和諸葛亮投胎後，誰比較聰明又誰比較會打架？前世和今生真的有關聯嗎？是因為我們的個性來決定我們的生肖、八字、星座，還是投胎在什麼生肖、八字、星座來決定個性？靈魂真的存在嗎？究竟是靈魂在控制肉身，還是肉身在控制靈魂？明知不能共用針頭卻為何控制不住拿針的手？靈魂和輪迴若存在，那為何我們都沒有過去的記憶？致使我們不停犯下重複的錯誤？老天爺讓我們鬼打牆般一直進行相同過程的深意到底是什麼？生命的意義到底是什麼？他拋出一個又一個的問題。</p><p>想也知道我只能靜靜地傾聽，那些以我當時的智慧絕對答不出來的問題。能為他做的就只是陪伴，以及不妨礙他思考而已。問到最後，他倒是自己下了結論：倘若有前世，我們應該也是好哥兒們，所以今生才會是莫逆之交；同理，如果有來生，我們仍然會結拜。然後他要「剃度為僧」去尋找生命的意義，不做流氓了。</p><p>夜深人靜，有的時候我在想，這會不會就是生命的意義？</p><p>兄弟，你的遺願，我盡力了。如果不能出書，那也是你自己的故事太爛，可別怨我。要不然，你有本事就顯靈來像小時候那樣罵我、捉弄我、嚇唬我吧！因為我真的好想你……最起碼，你的故事有感動到一個最想感動的人，我恨死毒品了！</p><p>I had a dear friend.</p><p>＊＊＊</p><p>我兄弟在出獄前，曾寫信給我。其中附過多首「七言絕句」，查過皆是他的原創。有一首很是切題，在此幫他與眾生分享：</p><p><i>「怨七情六欲易染，尤五光十色難離；肉身難得載道器，凡夫輕易慧根羈。」</i></p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-meaning-of-life/">生命的意義</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>我的好朋友・喬伊</title>
		<link>https://iknowledge.info/2023untold-joey/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 21 Sep 2023 12:00:47 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17307</guid>

					<description><![CDATA[<p>當眾人都為喬伊的努力有很好的成績感到開心之時，卻發生令人震驚、難過的事。喬伊總喜歡在週末夜流連於夜店酒吧喝酒跳舞，並尋找可發洩肉慾的「獵物」，有次在知名夜店喝到已醉的程度，在未有任何安全防護措施下與陌生「獵物」發生性行為...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-joey/">我的好朋友・喬伊</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p>這是一個發生在1998～2004年間，民風仍是保守年代的真實故事：</p><p>喬伊（Joey）是我的好友，也是朋友圈裡公認的開心果，只要有他在的聚會場合總是熱鬧且笑聲不斷，但偶爾有些朋友無法消受他大尺度的玩笑及無界限的肢體碰觸。像我對於他每回見面時，總是以唇貼著我的臉作為打招呼的方式，就感到無福消受，即使在人多的公共場所，他仍是如此。他老是對我說：「這可是你前世修來的豔福耶！」我往往無言以對……。</p><p>喬伊是「同志」也就是「同性戀」，他不僅有著耿直、朗爽的個性，也同時心思細膩和感性，特別是對造型美學有著極佳的天分和專業；專科畢業後，喬伊先後到日本、法國進修彩妝和精油芳香療法，他在很短的時間內成為美國知名彩妝品牌在台灣的首席彩妝師，也是當年許多知名藝人御用的化妝師。然而，更熱中於天然精油芳療的喬伊，在他於彩妝界如日中天時，突然轉換跑道，讓許多人驚訝及不解，他總是說他突然茅塞頓開領悟到：「彩妝固然可遮去瑕疵使人變得更美麗，但無法像香療可使人從內到外地變健康。」沒有多久的時間，喬伊成為一間知名連鎖美容美體公司的首席芳療師。</p><p>當眾人都為喬伊的努力有很好的成績感到開心之時，卻發生令人震驚、難過的事。喬伊總喜歡在週末夜流連於夜店酒吧喝酒跳舞，並尋找可發洩肉慾的「獵物」，有次在知名夜店喝到已醉的程度，在未有任何安全防護措施下與陌生「獵物」發生性行為，隔天理智恢復清醒的喬伊十分懊惱這事的發生，也非常擔心令人聞之色變的「愛滋」找上門來！就這樣，在擔憂和恐懼中渡過了三個多月後，喬伊實在無法承受這種內心的煎熬，悄悄地前往當時位在西門町的台北性病防治所抽血檢驗。當時人在義大利工作的我，有天大清早被電話鈴聲吵醒，接起問道：「誰？」電話那頭只有無聲回應我，我繼續問道：「是誰？怎不說話！」仍是沉默，片刻後電話那頭傳來啜泣聲：</p><p>「喬伊，是你嗎？怎麼哭了？」<br />「羅傑，我剛去看檢驗報告。」<br />「從你的哭泣聲我想我知道結果了。現在的你想哭就哭吧！」<br />「其實我不想哭，但我好想回家看看我母親。」<br />「這很棒！我找丹尼爾回台灣，一同陪你回老家，如何？」<br />「可是你們人在那麼遠的地方……」<br />「哪來的這麼多囉嗦！」</p><p>這通電話結束後的三、五天，我和丹尼爾分別從義大利和英國抵達台灣，陪喬伊回去台東，當我們三人飛抵台東豐年，是喬伊的母親來接機。在車上，坐在副駕駛座上的我，用著熱情的噓寒問暖來掩飾心裡的擔心，不知喬伊何時會丟出「震撼彈」。喬伊的母親自上車後就不停地問，是什樣的風將我和丹尼爾吹回台灣？並細說著她待會晚餐準備了哪些好料！坐在後座原本保持安靜的喬伊突然開口：「媽，我這趟回來是要告訴妳我得愛滋病，媽，對不起！」六年多來因為忙著進修和工作，而未回家的喬伊話說完後，車內瞬間沉靜下來。我看著駕駛座上的喬媽緊緊地抓著方向盤，努力地壓抑著不讓已泛滿眼眶的淚水流下，並說：「我這五、六年來沒有一天不想你，心裡多盼著忙碌的你偶爾能停下來休息、回來走走，現在終於把你盼回來了，回來就好。」原本我還在忐忑及擔心喬伊丟出震撼彈後會是什麼樣的場面，然而結果是多麼出乎我和丹尼爾的意料，而且令人感動，我們四人有默契似地保持安靜，讓這動人的親情之愛在車內無聲蔓延。</p><p>回到喬伊的老家，喬媽招呼我們休息，隨即進入廚房準備晚餐，喬伊在旁幫忙，喬伊開口：<br />「媽，對不起！我沒好好照顧、保護自己。」<br />「嗯！你確實不應該！你既然不能好好照顧自己，從現在開始讓媽親自來照顧你。」<br />「媽，對不起！我不知道還有多少時間……」<br />「誰都不知道自己還有多少時間，不是嗎？只要還有呼吸，就好好振作、努力活著！」喬媽說完擁抱著靜靜流淚的喬伊。</p><p>廚房外的我和丹尼爾，深深地被喬媽的堅強和寬容感動，現在的喬伊最需要的就是家人、支持和愛，喬伊沒有兄弟姊妹，喬爸因為事業打拚，在喬伊三、四歲時因為過勞辭世，留下一對母子相依為命，雖然經濟不是問題，但喬媽仍需身兼父職辛苦地拉拔喬伊長大，一直都是喬伊最堅強的依靠。現在知道喬伊得了愛滋病的喬媽，依然表現出一位母親的堅強、寬容和慈愛，這也正是喬伊非常需要的。</p><p>當時我們在台東待了四天的時間，這一趟丹尼爾和我並沒有特別做什麼、說什麼，我們只是用行動、用陪伴，讓喬伊感到溫暖，個性原本就開朗的喬伊在這四天當中，有摯親喬媽，以及好友的陪伴下，從悲傷和絕望中走出來，依然是那個我們大家最喜愛、最熟悉的開心果，其實我們都知道在喬伊笑容的背後，是經歷了許多歧視、嘲諷等傷害。</p><p>我、喬伊和丹尼爾自高中同班就是最要好的同學、好友，當時大家都稱我們「三人幫」，在國中時期喬伊便確定自己的性向，在那個還保守的年代，雖然有些人覺得這沒什麼，這是喬伊自己的事情，但仍有更多人覺得喬伊是異類、怪胎、噁心，不僅使用言語暴力來傷害喬伊，更甚至用行為暴力在團體中排擠喬伊。喬伊的感受是如何呢？當然不好，而且是非常不好！但喬伊調整、恢復的能力極強，強到一個讓我跟丹尼爾都常說：「喬伊根本不是地球的生物！」我們常對喬伊開玩笑的說：「為什麼你的難過、失望、沮喪都不超過三分鐘就雨過天晴？」喬伊總是說：「人生何其短，為何要浪費在沒意義的人事物上面呢？」我們三人高中同班，念的是資優班，我和丹尼爾或許有天生智商的優勢，但喬伊確實是屬於苦讀型的學生，他一直不斷增加自已的知識和能力，他認為「唯有知識和能力，才能使人強大」。</p><p>在台東的第五天早上我們又來到了機場，我和丹尼爾因為工作的關係必須回歐洲，而喬伊與我們同班機先飛回台北，以喬伊的工作來說，並不是說離職就能立即走人，他必須先向公司提出辭職，然後處理交接程序，所以喬伊與喬媽約定半年後回台東。</p><p>返回台北後的喬伊立刻向公司提出辭職，驚動了公司高層，甚至連非常欣賞、肯定喬伊的專業能力的董事長都親自出面慰留，即使喬伊誠實地告訴董事長他真正離職的原因，喬伊的公司仍希望他留下來，但其實喬伊已有新的想法和目標，最後喬伊答應公司在這半年的時間為他們培養一批芳療師，而喬伊也確實在半年的時間內培養出專業的芳療師。自喬伊返回台北後變得非常忙碌，他固定時間前往台北性防所做衛教、抽血檢查、拿藥服藥以控制病毒數量，他也調整飲食、作息，並開始固定運動。除此之外，喬伊透過宗教及社福機構進入學校等團體，給青年學子分享個人經驗並宣導安全性行為的重要性，就這樣半年後喬伊結束台北的工作返回台東與喬媽一同生活。</p><p>然而返回家鄉的喬伊並未只過著養病的生活，反而與喬媽兩人到處奔走，後來在喬爸留下來的土地上辦了一間幼稚園，專門收留貧窮、弱勢的孩童，喬伊和喬媽將愛和溫暖傳遞給這些有著不幸遭遇的孩童們。我們這群好友「八仙幫」，除了我、丹尼爾、喬伊，還有蓓蓓、雨珊、城城、史丹利、坦尼，雖然大家因為工作的關係散在世界各地，但我們常常使用「MSN」即時通開群組聊天室，彼此互相關心，更多是為了喬伊，要讓他知道，我們都好愛好愛他和喬媽，也希望他能偶爾停下來緩一緩，休息一下。但喬伊總是說：「我還有多少時間可以等、可以浪費？我知道你們是為我好，但我不想浪費我這不知道還剩多少時間的生命，所以請你們容許我這美麗的堅持。」其實，不僅是喬伊，包括我們這些健康的人，沒有任何人能預知自己的生命有多少時間，實在無法預知那些天災、人禍或疾病和時會降臨在我們身上，所以我們都應該珍惜生命，不要虛度、浪費光陰。</p><p>就在2004年4月2日的大清早（義大利的時間）我又被電話鈴聲吵醒，看著手機螢幕是喬伊的號碼，半醒的我按下通話鍵：<br />「怎麼了？喬伊。」<br />電話另一端傳來喬媽的哭泣聲：「羅傑，喬伊走了！」<br />喬媽的話讓我瞬間清醒：「喬媽，慢慢說，怎麼回事？」</p><p>電話這頭的我靜靜聽著喬媽說著事情的經過，我的雙眼再也忍不住，不停地淌下淚水，怎麼會呢！怎麼是如此的結束生命！多不公平啊老天爺！我的心裡發出許多的驚嘆號！昨天才是4月1日愚人節啊！今天可是4月2日了啊！當下的我多希望下一秒喬媽會開口說：「遲來的愚人節玩笑，可別介意喔！」然而喬媽卻只是不停地哭泣。最後，我請喬媽節哀，並請她確定告別式的日期後立刻通知我。</p><p>喬伊是於台灣時間4月1日晚間辭世，在前往幼稚園孩童家中探訪的路上，被酒駕違規闖紅燈的車輛超速撞上，悲傷至極的喬媽遲至隔天才通知我這個惡耗。說真的，當時的我實在無法相信，「八仙幫」的好友們也都無法相信老天爺是如此帶走喬伊，想要好好地、認真地活下去的人卻走得如此倉促！讓熱愛生命、熱愛這個世界的喬伊無法好好地與我們道別，這也許是唯一的遺憾……。</p><p>同年4月26日我們「八仙幫」又再次相聚在喬伊的告別式，會堂正中央掛著喬伊最喜歡的照片，他笑的好燦爛，露出整齊潔白的牙齒，似乎在對我們說：「不要為我流淚，不要為我傷心，請用微笑送我！」但為喬伊多麼不捨的我們還是靜靜地流淚，我在告別式上代表「八仙幫」好友們送別喬伊：「Dear Joey，除了你以外，我們「八仙幫」都到了，沒想到再次相聚卻是你的告別式，真的很不想與你說再見，因為我們真的不捨，真的很想你，很懷念過去所有的種種，你總是帶給我們許多驚奇，包括這一次也是，三十的年歲或許有些短暫，但喬伊你認真、努力活過，即便在生命最後階段你仍抱持美麗的堅持，留愛在許多許多的孩童身上，我想此生如此也夠了，也值得了！不想說出口的再見，最終仍要對你說，珍重吾友，我們仍期待終會再聚之時，相信到那時候將會是永遠！Goodbye my dearest friend Joey！」</p><p>最後在我們離開去機場前，喬媽帶我們去她與喬伊創辦的幼稚園，當喬媽拉開園區大門時，我們「八仙幫」的七人內心都好激動，也好感動，這是喬伊燃燒生命到最後的成果，看著園內的孩童們臉上都掛著天真、快樂的笑容，聽著此起彼落的嬉戲聲，偶爾跑到我們身邊的孩童幸福地叫著：「喬奶奶好！」也看著喬媽臉上盡顯慈愛及滿足的回應：「好！好！」當下我明白了喬伊「美麗的堅持」。</p><p>喬伊，與其要向你說聲再見，我更想向你說聲謝謝，因為你留下的比你帶走的更多更多，「謝謝你！吾友喬伊。」</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-joey/">我的好朋友・喬伊</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>2016跨年的眼淚</title>
		<link>https://iknowledge.info/2023untold-2016nye/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 14 Sep 2023 12:00:24 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17278</guid>

					<description><![CDATA[<p>我們早就斷了聯絡，只剩臉書的朋友關係，你是我人生中認識的第一位出櫃同志，在那個還不知道同志是什麼的年代，你自信且耀眼地到處罩著我，在我迷惘渾噩的青少女時期，我的第一個錢包是你送我的，你是如此得耀眼且不可一世，我都還記得你說你只想活到四十歲，再老就會變醜，不想活這麼久。</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-2016nye/">2016跨年的眼淚</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：小劉醫師<br /></b> 外科作家 </span><br /><a href="https://www.facebook.com/Drlisaliu?mibextid=LQQJ4d" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<p><b>作者：巧克</b><br>發生年代：2016年至今</p>								</div>
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									<p><i>嘿，你還好嗎？<br />沒想到就這樣過了五年，<br />你知道因為你的事情，我找到我必須完成的志願嗎？</i></p><p>「我希望有一天，社會對愛滋病的歧視會消弭，每個HIV+<span style="color: #ff3300; font-size: 14px;">（註1）</span>的人都是健康地跟病毒共處，身心都是全然健康、坦坦蕩蕩的，沒有任何一個疾病是被歧視的，也沒有罪名貼在任何一個人身上。」</p><p>我記得2014年愚人節到新公司報到，負責當時還名叫舒發錠<span style="color: #ff3300; font-size: 14px;">（註2）</span>，現在名叫亞翠佩的愛滋病治療藥物，一切過程都很愚人節，各種不同的混亂，但我心裡只記得有很多病患還吃著一天要吞好幾顆藥的事，所以無論工作發生多麼荒唐、多麼混亂、多麼讓人失志的情況，我只要記得自己的任務是讓「一天一錠保持愛滋病毒控制」且「診斷即治療」實際發生，然後我就在每次困境和痛苦中存活下來。</p><p>終於2016年6月，疾管署更新愛滋治療準則：「第一線推薦處方為一天一錠的處方」，台灣初次確診的愛滋病患都能診斷即治療，猶記當年完成這個任務後，心裡想著我完成這個任務，差不多就可以思考有沒有別的領域或職位可以轉職了。接著一邊忙著PrEP<span style="color: #ff3300; font-size: 14px;">（註3）</span>的事情，一邊就到2016年底，記得那天一個久未聯絡的同學，年初還諮詢我愛滋病友長照的事情，他說自己的保戶有這個需求。</p><p>那天是2016年12月30日，他告訴我年初向我諮詢的那個保戶，原來是你，然後他聽說你已經走了，但也不確定，因為你爸不讓任何人探望。</p><p>我們早就斷了聯絡，只剩臉書的朋友關係，你是我人生中認識的第一位出櫃同志，在那個還不知道同志是什麼的年代，你自信且耀眼地到處罩著我，在我迷惘渾噩的青少女時期，我的第一個錢包是你送我的，你是如此得耀眼且不可一世，我都還記得你說你只想活到四十歲，再老就會變醜，不想活這麼久。</p><p>2016年跨年這晚，我翻著你的臉書，哭著責問著自己，過去幾年我想著完成自己的不可能任務，想著把準則調整好了就差不多？卻未察覺，一顆藥物可以治療疾病，但未必能全然讓社會的歧視撕去。我居然還以為自己已經做了很多，很夠了，足以逃離這個混亂的地方，但——我真的盡了我所有可以做的嗎？我盡力了嗎？醫院依舊有著隱性歧視，外科執業醫師可能在內部有著不可說的擔憂，社會依舊有著巨大的標籤，所以你寧願不治療，也寧願在最後臥床、氣切、手腳萎縮，曾經這麼愛美的你，學醫的你怎麼可能不知道疾病不治療的後果。</p><p>就這樣，從2016跨年那晚，我向老天爺許了心願——</p><p>我希望能夠有更好的藥物，讓HIV+的人能舒服地被治療。</p><p>我希望能夠有可負擔的預防，讓有風險的人能夠選擇加強保護。</p><p>我希望HIV+的人能更勇敢地愛人，不害怕被罪名所束縛。</p><p>我希望台灣能成為一個HIV能夠被公開討論怎麼更好對待，而非討伐的環境。</p><p>在那之後，我的心願都陸續完成，有著更小顆且吃了無感的藥進來台灣、PrEP也有了公費計畫及病患支持計畫、除罪的進程也至少先用危險性行為的範圍釋義，得到條件式的除罪，我也還在努力著讓台灣變成更溫暖友善的環境。</p><p><i>嘿，你現在好嗎？<br />後來輾轉看到一張你的照片，<br />存活下來的你插著鼻胃管坐著輪椅。<br />現在的改變希望你能快樂的活著，<br />雖然病毒剝奪了你部分的健康，<br />但你知道當年的你，讓我許了願造成改變。</i></p><p><i> </i></p><p><span style="color: #ff3300;">註1</span>：HIV+為HIV Positive，「＋」代表陽性，感染HIV病毒。</p><p><span style="color: #ff3300;">註2</span>：Atripla，複方口服抗愛滋病毒藥物。</p><p><span style="color: #ff3300;">註3</span>：PrEP（Pre-Exposure Prophylaxis），中譯「暴露愛滋病毒前預防性投藥」是有效預防愛滋病毒感染的方式之一。若持續有愛滋感染之高風險行為，檢驗確認未感染愛滋病毒，經醫師評估需進行預防性投藥者，可透過穩定持續使用PrEP藥品，讓體內具足夠藥物濃度，預防感染愛滋病毒。</p>								</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-2016nye/">2016跨年的眼淚</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>轉・心</title>
		<link>https://iknowledge.info/2023untold-change-mind/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 07 Sep 2023 12:00:41 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17351</guid>

					<description><![CDATA[<p>二十三歲，正值青春年華，人生才正要精彩，設定了許多夢想等著去完成，這一切的一切，是「看似」如此地美好，卻在一通電話後，全部破滅了... 2006年中旬，因為另一半的「毒品」案件，遭警方以關係人身分約談，現場還來了衛生局人員，說要抽血檢驗是否為「HIV」帶原...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-change-mind/">轉・心</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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									<p><span style="color: #e8d29e;"><b>發聲者：傳播弟</b><br />Youtuber</span><br /><a href="https://www.youtube.com/channel/UC46aR2uZVE8pkb72sbNoUVQ" data-wplink-edit="true">➞ 發聲者連結</a></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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				<div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a18d311" data-id="a18d311" data-element_type="column" data-e-type="column" data-settings="{&quot;background_background&quot;:&quot;classic&quot;}">
			<div class="elementor-widget-wrap elementor-element-populated">
					<div class="elementor-background-overlay"></div>
						<div class="elementor-element elementor-element-962c804 elementor-invisible elementor-widget elementor-widget-image" data-id="962c804" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-0907-p1-q9l1xp4963ayuhjiqmi8ag4h0h0ledf3b8tsdtyc6g.jpg" title="2023PR3-0907-p1" alt="二十三歲，正值青春年華，人生才正要精彩，設定了許多夢想等著去完成，這一切的一切，是「看似」如此地美好，卻在一通電話後，全部破滅了⋯" loading="lazy" />															</div>
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				<div class="elementor-element elementor-element-e107ff9 elementor-invisible elementor-widget elementor-widget-image" data-id="e107ff9" data-element_type="widget" data-e-type="widget" data-settings="{&quot;_animation&quot;:&quot;fadeInUp&quot;}" data-widget_type="image.default">
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/2023PR3-0907-p1-q9l1xp3rvcneo2k8a0qpam1u7hebfhxy9bq9q3qhzc.jpg" title="2023PR3-0907-p1" alt="二十三歲，正值青春年華，人生才正要精彩，設定了許多夢想等著去完成，這一切的一切，是「看似」如此地美好，卻在一通電話後，全部破滅了⋯" loading="lazy" />															</div>
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									<p><b>作者：Lang</b><br />發生年代：2006～2021年</p>								</div>
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									<p>二十三歲，正值青春年華，人生才正要精彩，設定了許多夢想等著去完成，這一切的一切，是「看似」如此地美好，卻在一通電話後，全部破滅了⋯⋯。</p>
<p>2006年中旬，因為另一半的「毒品」案件，遭警方以關係人身分約談，現場還來了衛生局人員，說要抽血檢驗是否為「HIV」帶原，那時以為只要是「特殊交友圈」的，就都會有這樣一個程序，當下也沒多想什麼，直接乖乖配合地捲起衣袖。坦白說，我有「固定伴侶」，也沒在外面四處「拈花惹草」的習慣，相對的，我對自己的檢驗是有信心的，從不曾懷疑過自己會有「中獎」的一天。然而，很多時候，我們越是覺得「不可能」發生的事，偏偏就是發生了。</p>
<p>在抽完血的大約一個月後，我接到了衛生所打來的電話，他說：「徐先生您好，您的抽血報告出來了，結果是『陽性』反應，但您先不要擔心，這個結果不一定是正確的，所以，想再跟您約個時間，重驗一次確認結果，不知您何時方便呢？」此時的我，腦袋中是一片空白狀態，以至於後面到底說了什麼全都忘光，就連對方電話是何時掛掉的也不知道。而我的人生，就是因為這通電話，漸漸開始偏離設定好的軌道，活得自卑、沒自信，除了逃避現實外，整日怨天尤人、自暴自棄，還因為看到身邊的朋友感染「HIV」、沒定期回診接受治療，導致抵抗力（CD4）變差，身體狀況越來越不好，最終離開人世的情形，進而有了想「輕生」的念頭，覺得反正也活不久，那不如自己早早了結。</p>
<p>但，不可否認，人生真是處處充滿著「希望與轉機」。</p>
<p>在我人生最低潮、想要放手結束生命時，我的「貴人」不斷地出現，除了一直在身邊陪伴著我，並不厭其煩地開導我，甚至在得知我有「HIV」時，沒有嫌棄、排擠、看不起我，還幫我查了許多相關資料，且一步步地帶著我去認識這個疾病。當我真正了解什麼是「HIV」後，我也才知道自己沉淪的那幾年有多麼「愚蠢」。不只因自己的「無知」糟蹋自己，更因「逃避」而讓那些關心我的家人、朋友們擔心受怕，傷害到他們不自知，更差點讓「白髮人送黑髮人」。還好，值得慶幸的是沒讓憾事發生，不只沒有發生，我更重拾了對人生的期望、活著的勇氣，以及做人的那份初衷與自信。是的，我找回了自己，我回來了！</p>
<p>轉眼間，就這樣與「病毒」共存了十六個年頭。在這十幾年的日子裡，我從那最初的自我封閉、想放棄生命，到現在的勇於面對並接受，我發現，除了每天都要服藥「維他命」<span style="color: #ff3300; font-size: 14px;">（註1）</span>一顆外，並沒有跟其他「非感染者」不同，甚至活得比許多人都還要來得健康。之所以會有如此巨大的改變，除了有「貴人」的相助與扶持外，「心境」的轉變也非常重要，如證嚴法師說的：「念轉，運就轉。」正是這個道理。後來得知是當時的另一半傳染給我後，我將心中的那「怨恨」轉為「感恩」，畢竟，若不是因為他，我不會在那麼年輕時，就知道「健康」的重要性，不是嗎？</p>
<p>在經過這次事件的洗禮後，我深深地體會到什麼叫人生沒有「來日方長」，只有「世事無常」的道理。在這漫漫人生道路上，我們都無法預測下一秒會發生什麼事，我們所能做的，就是過好這得來不易的每一天，好好珍惜、愛護身邊的每一個人，使自己過得充實，讓他們感到美好，這才是最重要的。希望我的故事，能讓那尚在迷惘的「帕斯堤」<span style="color: #ff3300; font-size: 14px;">（註2）</span>們找到方向，並打開那「封閉」的心，重新舞動屬於自己的人生。要知道，世上不幸的人比比皆是，他們不但沒有被擊倒，反倒是越挫越勇、越活越精彩，那&#8230; 我們呢？</p>
<p>相信，就一定可以！</p>
<p>&nbsp;</p>
<p><span style="color: #ff3300;">註1</span>：此處「維他命」並非真的抗病毒藥物名稱，而是感染者有時會以「維他命」代稱抗病毒藥物，避免言談間暴露自己感染服藥的狀況。</p>
<p><span style="color: #ff3300;">註2</span>：「帕斯堤」，為HIV Positive音譯，指稱愛滋感染者。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-change-mind/">轉・心</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></content:encoded>
					
		
		
			</item>
		<item>
		<title>愛滋與藥，當然還有愛</title>
		<link>https://iknowledge.info/2023untold-hiv-drugs-love/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 31 Aug 2023 12:00:30 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17350</guid>

					<description><![CDATA[<p>用了藥我會感受到被疼愛，我喜歡那樣的感受。我自己知道，那種短暫的愛是那麼虛無，而接在這種愛後面的，是退藥後更多的孤寂，但我也知道，在這個圈子裡，我需要這種被愛的感受。於是我出入各個同志場所，物色獵物，然後用藥，追尋我的愛。</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-hiv-drugs-love/">愛滋與藥，當然還有愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p>我是名男同志，二十七歲，是正在服刑的受刑人。我的父母都曾有過一段婚姻及子女，他們再結婚後，生下我一個獨生子。不過父母在我兩歲時就離婚，有時候總是搞不懂他們的想法，或許家家有本難念的經吧！小時候的印象總是媽媽把我推給阿姨照顧，不然就是推給爸爸和奶奶，直到上了小學，就在奶奶這邊定下來了。</p>
<p>因為我是獨子，在爸爸家給奶奶照顧時，總是無聊一人，逢年節才有堂姐、堂哥回來作伴，或者初二回娘家，媽媽才會把我接去外婆家跟表哥、表姐玩樂，以至於我平常讀書時都是隻身一人。大概國小時我就發現自己喜歡男生、男老師，那時對性充滿好奇，家裡又有電腦，國小三、四年級我就在網站上找其他男同志，第一次約出去就是個三十歲左右的大人，和他發生了無套性行為。因為國小沒教愛滋性病的知識，我當然不知道保險套是什麼，之後我也總是無聊就約不同的人出去，由於年幼，對方常常送我一些物品，包括我當時不離手的智慧型手機。大約國中三年級就有人開始給我娛樂性藥物，我之後的人生就開始沉淪在「藥愛」中，不過基測倒是考了不錯的成績，上了國立商業高職，但要學會計，對我來說是很難的事情，於是我高一就因成績不好而休學了。</p>
<p>之後的日子我常常泡在藥裡，用了藥我會感受到被疼愛，我喜歡那樣的感受。我自己知道，那種短暫的愛是那麼虛無，而接在這種愛後面的，是退藥後更多的孤寂，但我也知道，在這個圈子裡，我需要這種被愛的感受。於是我出入各個同志場所，物色獵物，然後用藥，追尋我的愛。</p>
<p>在我十七歲時，忽然發現自己身上充滿疹子的雙手，上網查才知道可能是梅毒，那時聽朋友的話，去昆明院區掛號看診，抽了血，回去等回診看報告。當時我知道自己被感染後，只想趕快治好自己的梅毒，因為誰想和一個身上長滿疹子的人打炮呢？但當時我未滿十八歲，要幫我打盤尼西林只能有家長同意，那時我心想什麼鬼啊？我自己的病難道我自己不能處理嗎？那時的情緒很糟，說要通知父母，於是我就大鬧診間，護理站通知了當時昆明防治中心主任莊個管師，來跟我聊。我只知道她帶我去一個沒人的診間，我坐在她的對面，她伸出手握了我的手，我立即揮開她的手說：「我的血有毒。」她對我說：「你還好嗎？」才慢慢讓我卸下心房，聊一些正確的愛滋觀念，問我的性關係、家庭背景、交友，事後我不是很情願地把我媽的手機號碼給她，但她立即讓我媽同意我接受治療（雖然至今我不知道她是怎麼讓我媽同意這件事），我事後回想，當時我心中還有很多疑問吧！一定有許多想談的心事。然而我的疑問和心事，也不知道該找誰說，因為H這種事，如果讓圈內的人知道，搞不好以後的日子都不能自在地過，又有誰可以好好談呢？我感染後的情感和性愛要如何安排？莊個管師當時只跟我說了一句：「只要你需要，我永遠都在。」到此刻服刑的現在，她真的都在，不曾離開過。</p>
<p>莊個管師曾問我為何要用搖頭丸？我跟她說：「用了藥你會覺得面前這個男人是全心全意愛著我的。」「可是你們才認識不到半小時，你怎麼會相信對方是愛你的？」「我也知道那不是真的，但在當下，你會相信他是真的愛你的。」「我知道妳也愛我，但是，妳知道的，那不一樣，妳永遠無法取代那種感覺。」我因為莊個管師的關係，跟在她身旁一陣子，那陣子也耗了她很多精神和體力吧！在她的陪伴下，我找回讀書的念頭，也考上了某間還不差的專科學校，在同學的關心和陪伴下，找回讀書的感覺，得到暫時的安定，但每逢連假或寒暑假我就會進入瘋狂玩樂的狀態。</p>
<p>我十九歲、專科快畢業時，上網約人的過程中，發現慢慢地大家都轉去用安非他命，使我常常約不到ES的對象，不得已只好也跟著用安非他命，卻在使用後開始愛上煙嗨<span style="color: #ff3300; font-size: 14px;">（註1）</span>的感覺。二十三歲時，過年前因施用被抓，送去勒戒，父母也知道我有施用毒品的情形，之後奶奶過世，我非常悲傷，也不想向家人拿錢買毒，曾有一次家人問我：「這個月你怎麼花了八萬元，花到哪去了？」那次之後，我便換了新的身分開始販毒，不久即因為販賣安非他命及吸食器被捕，搞得自己官司纏身。</p>
<p>服刑之前，我非常怕死，一直有追蹤自己的免疫狀況，覺得CD4算高，應該還不用服藥；服刑之後，好像大家都有服藥，我也開始服藥了。服刑三年多，在愛滋收容人場舍，我發覺愛滋收容人的年紀偏極端，因為外頭減害計畫做得成功，使用海洛因的人，可以買到或拿到新針，不必像以前水、針共用。所以工廠內收容人要不是年紀偏大，不然就是像我們這種小同志了。雖說服刑的過程，我已經沒有感受到以前老犯人所說欺負同志的情形，但我覺得有些獄政卻讓我有一點點失望。例如：H收容人為何不能去當各科室的雜役？還有高中補校，會因為H收容人在入監時申請和緩處遇<span style="color: #ff3300; font-size: 14px;">（註2）</span>而被拒絕。我們知道愛滋的傳染途徑就是那三種，服刑的人當然什麼都不能做，自然沒有傳染的疑慮，只希望在我未來要服刑的日子裡，獄政可以對「愛滋」越來越友善，也希望我們能和一般受刑人一樣得到合理的對待，不再有差別待遇。</p>
<p>在此，我想感謝我的父母，雖然他們還是處於雙盲的狀態：不知道我有愛滋，不知道我是同志。</p>
<p>雖然他們自小以來常常不在我的身邊，但服刑之後，才知道他們是真心在乎我、關心我的人，也謝謝愛滋教會了我許多事，或許沒交過B的我還不懂得愛，但我也會努力地去學習這世上各種不同領域的愛，也謝謝權促會「朵朵信箱」<span style="color: #ff3300; font-size: 14px;">（註3）</span>的志工們，讓我們在囹圄之內，還是有人可以聽你說說話、談談心事，我認為這對受刑人很重要，如果沒人給你心理支持，自己總會把心事悶在心裡，漸漸地監獄化人格就會跑出來。當然還有那位昆明的個管師，我知道妳希望我可以變成更好的人，我也會在裡面痛定思痛。</p>
<p>最終，我衷心祝福每個人都能與藥做最適當的距離。藥不可怕，自己的慾望才是該好好控制的，也希望大家都能找到屬於自己的性愛方式，屬於自己的感情。當然，也包括正在看這篇文章的你。</p><p><br></p>
<p></p>
<p><span style="color: #ff3300;">註1</span>：煙嗨，使用安非他命進行性愛。安非他命，屬於毒品危害防制條例的第二級毒品，是一種強效的中樞神經興奮劑。</p>
<p><span style="color: #ff3300;">註2</span>：和緩處遇，指矯正機關對於身心狀況較為弱勢的受刑人，符合條件者，給予較為溫和寬鬆的處遇，申請條件於《監獄行刑法》第19條1項：「前條適用累進處遇之受刑人有下列情形之一者，監獄得給予和緩處遇：一、患有疾病經醫師證明需長期療養。二、有客觀事實足任其身心狀況欠缺辨識能力，致不能處理自己事務，或其辨識能力顯著減低。三、衰老、身心障礙、行動不便或不能自理生活。四、懷胎期間或生產未滿二月。五、依其他事實認為有必要。」</p>
<p><span style="color: #ff3300;">註3</span>：「朵朵信箱」為愛滋感染者權益促進會的服務之一，透過回覆愛滋收容人紙本信件，解答與健康、權益有關的詢問，並且提供心理支持。</p>								</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-hiv-drugs-love/">愛滋與藥，當然還有愛</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>墨點餘生</title>
		<link>https://iknowledge.info/2023untold-ink-dots/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 24 Aug 2023 12:00:32 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17311</guid>

					<description><![CDATA[<p>我是一個出櫃的感染者，別人可能覺得我很勇敢，直接在交友軟體上面公開，或是可以對陌生人公開，但這只是我保護自己被拒絕的方法。公開愛滋身分，表面上是濾鏡，過濾不理解，或是沒辦法接受愛滋的人，實際上更像是遮眼布，把我害怕面對的拒絕，直接排除...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-ink-dots/">墨點餘生</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><span style="color: #e8d29e;"><b>發聲者：雅各</b><br />Youtuber</span><br /><a href="https://www.youtube.com/雅各Jacob" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<p><b>作者：Erick Lin</b><br />發生年代：2021年</p>								</div>
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									<p>昨天是我跟前任分手的一週年，因為去年關係的破裂，我開始了自我的一趟旅行。</p><p>一開始與他交往時，我對自己的愛滋陽性身分總是有點焦慮，經常很怕因為自己的身分，讓對方遭遇到別人不友善的眼光，因此明明知道在這段關係裡我沒有受到平等對待，卻還是一直選擇吞忍。</p><p>我是一個出櫃的感染者，別人可能覺得我很勇敢，直接在交友軟體上面公開，或是可以對陌生人公開，但這只是我保護自己被拒絕的方法，只要那些拒絕在未開始對話之前就完成，在我沒看到的地方發生，那我就不會受傷。</p><p>公開愛滋身分，表面上是濾鏡，過濾不理解，或是沒辦法接受愛滋的人，實際上更像是遮眼布，把我害怕面對的拒絕，直接排除。</p><p>當時被迫主動提分手已經很難過，但對方在我們分手之後的種種行為，把我本來就喘息困難的空間再次擠碎、輾壓，一次又一次，惡夢輪迴反覆。</p><p>分手前已經再次回去精神科的診間，分手後我整修我的房間、試著寫詩療癒自己，了解光靠自己的腳步已然無法站立，開始我的十三堂心理諮商。從原生家庭、人格的養成、行為的模式、我與他人的互動、各方面不同的角度重新發現自己。</p><p>書寫諮商的過程讓我長回自己心靈的肌肉，面對自己內心最巨大無形的敵人——我無法像其他人一樣，因為我被自己的血液限制了所有的想望。</p><p>這不是一個好對付的敵人，我跟他之間總是會有一場拉鋸戰，他什麼時候會出現呢？</p><p>當你覺得自己鼻子有痘疤和小時候的傷疤影響美觀，想做醫美把它去掉的時候，你鼓起勇氣詢問了幾間醫美診所，他們都答覆你有愛滋，儀器的零件不能替換，不能幫你處理。</p><p>當你牙齒有點不舒服想去看診時，你會想我用抗敏感牙膏塗在牙齒上久一點，再撐一下好了。</p><p>當你約炮時，你的檔案明明已經寫了你是感染者，但是別人約得這麼爽快，你怕別人是不是沒看到，又會自己主動提一下。有時候你挖到更多故事，有時候沒有回聲。</p><p>當你遇到別的感染者要約你時，他不是你的菜，但是你怕你的拒絕，會讓他覺得你在拒絕他的血液。</p><p>當你遇到真正心儀的人時，你覺得他的家世成就，還有粉絲數，就讓他血液高貴，而你只能崇拜當粉絲，用最客氣的方法與他聊天，而不是最聰明淘氣，還有熱血奔放的那個你。</p><p>這個敵人是個打叢林游擊戰的高手，你永遠不會知道他會在什麼情況下忽然出現，防不勝防。</p><p>大概是上個月吧！有位學生問我，如果有人要約你，你會提醒他你是感染者嗎？我才意識到，已經有一段時間沒有主動向要約的人提醒這件事情了，我從來沒有想到可以做到這點，對我來說是一項很大的進步，我又更愛自己一點點了。</p><p>如果有一天，我連交友檔案都不用交代，約到一半忽然被問有沒有檢查過，而我可以直接講出來，而不怕對方覺得被欺騙，或是突然暴怒，並且理直氣壯地喝斥對方對於愛滋知識的不足，那我真的是飛不樂思（fabulous）。</p><p>2021年同志遊行主題是友善日常。對我來說，這還是一個進行式，雖然我已經進步了一點，可是我對真正喜歡的人，還是沒有那個膽量提出一起吃個飯、一起在河邊走走，約炮對我來說依然是與人最不親密的交流方式（裸體跟裸心需要的能量非常不一樣，老司機一定了解箇中滋味）。</p><p>今年看到我學生不論異同，一個個有了家庭、有了孩子，我真的也很想要這樣平凡、有點辛苦的幸福（孩子的部分用貓取代就好惹XD）。</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-ink-dots/">墨點餘生</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<item>
		<title>十年</title>
		<link>https://iknowledge.info/2023untold-a-decade/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 17 Aug 2023 11:55:56 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=16867</guid>

					<description><![CDATA[<p>看著當時文字寫下的心情，將近十年之後，現在自己竟然一如既往的冷靜。印象中，對於自己感染的事實，只有掉過兩次眼淚。該說自己是堅強嗎？還是豁達？甚至是天真到令人覺得愚蠢？至少，十年後的現在，我能一頁一頁地翻動回憶中的那每一個片段，而且不感受到掙扎與不快...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-a-decade/">十年</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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															<img loading="lazy" decoding="async" width="600" height="600" src="https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2.jpg" class="attachment-full size-full wp-image-17414" alt="" srcset="https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2.jpg 600w, https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2-100x100.jpg 100w, https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2-300x300.jpg 300w, https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2-150x150.jpg 150w, https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2-370x370.jpg 370w, https://iknowledge.info/wp-content/uploads/2099/08/2023PR3-1-2-people2-90x90.jpg 90w" sizes="(max-width: 600px) 100vw, 600px" />															</div>
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									<p><span style="color: #e8d29e;"><b>發聲者：賈培德<br /></b>資深廣告配音員<br />YouTuber、劇場演員</span><br /><a href="https://www.facebook.com/dzchia.tw" target="_blank" rel="noopener">➞ 發聲者連結</a></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY, MY SOUND_</span></strong></p>								</div>
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									<p><strong><span style="font-size: 30px; color: #ffffff;">YOUR STORY,<br />MY SOUND_</span></strong></p>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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									<strong><span style="font-size: 24px; color: #ffffff;">你的故事、我的聲音</span></strong>								</div>
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															<img loading="lazy" decoding="async" width="1920" height="900" src="https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1.jpg" class="attachment-full size-full wp-image-17593" alt="" srcset="https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1.jpg 1920w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-700x328.jpg 700w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-300x141.jpg 300w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-1024x480.jpg 1024w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-768x360.jpg 768w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-1536x720.jpg 1536w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-370x173.jpg 370w, https://iknowledge.info/wp-content/uploads/2023/06/2023PR3-0817-p1-1410x661.jpg 1410w" sizes="(max-width: 1920px) 100vw, 1920px" />															</div>
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									<p><b>作者：奕杰</b></p>								</div>
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									<p>於是，<br />我翻閱了被藏在櫃子最角落的那本日記。</p><p>2011年12月6日。<br />身分，改變了。</p><p>看著當時文字寫下的心情，將近十年之後，現在自己竟然一如既往的冷靜。印象中，對於自己感染的事實，只有掉過兩次眼淚。該說自己是堅強嗎？還是豁達？甚至是天真到令人覺得愚蠢？至少，十年後的現在，我能一頁一頁地翻動回憶中的那每一個片段，而且不感受到掙扎與不快。不論自己的狀態再怎麼變，那個叫做「我」的靈魂自始至終，沒變。</p><p>從一開始的忐忑、不解，到自責，這些情緒其實從來沒有少過。但可能樂天如我，碰到眼前解決不了的事，就先擱置吧！將解決眼前可以且必須立刻解決的事情，列為最優先。於是，就這樣一路從慌張到進入醫療、個管、公衛的體系。人家說什麼，我便做什麼，沒有猶豫與其他的想法。就這麼一步一步，重建自己的一切；不論是身體的，還是心情的。事實上，這一切並沒有想像中難熬，也許是工作上的訓練，讓我對於事物的判斷與決策懂得權衡與調整。因為日常生活中有比自己感染更繁雜得多的事需要處理。對於HIV<span style="color: #ff3300; font-size: 14px;">（註1）</span>，我要做的就只有跟隨醫囑，順從服藥，時間到了追蹤，相對起來，比自己的日常容易得太多了。尤其是在確診的前幾年，正是自己在工作表現奮力往上爬的時刻，坦白說，根本沒有那麼多的心思自怨自艾。</p><p>但好勝的自己，很多時候是因為自己的好勝而挫折。習慣量化看數據表現，在確診的初期，給了自己許多的壓力，要求自己每次的追蹤報告數字都要比前一次進步。每次回診追蹤的報告，把它當成了業績壓力。數字難免上上下下，表現好的時候覺得雀躍，表現不好的時候又覺得自己很沒用而洩氣，把整件事當成事業來經營，完全是非得把自己逼到用盡力氣不可。主治醫生大概知道我這種情況，很明確地告訴我：「CD4<span style="color: #ff3300; font-size: 14px;">（註2）</span>只是一個指標，夠用就好，不用盲目追求漂亮的數據，重點是要你能生活得更自在、健康就好。」我多希望「不用盲目追求漂亮的數據」這句話出自我的直屬主管多好（哈）。</p><p>但也的確點出了一些初確診病友們的心態，真的，不用因為報告的數字高低而影響你走出診間的心情。至少這十年來，我回頭翻閱自己的雲端病歷，感冒，只有三次。這下，你有沒有稍微放心了一些？真人實證，CD4夠用，真的只要夠用，就已經讓日常生活依舊。</p><p>關於治療藥物，我也換過了幾次藥物組合，從一天多次多顆，總是要記得哪一顆得在哪個時間吃，到現在的一天一次，一次一顆。我暗自感謝科學的進步，雖然不敢奢望在有生之年，看到可以完全治癒的治療方式出現。但現在的狀態，也已經感到舒適了。因為工作的關係，需要經常世界各地往來，一開始，非常害怕自己帶著一堆藥物進入各國關口時會碰上麻煩。尤其是在入境申報表上那欄個人健康欄位，總是讓我很難下筆。更有甚者，去到有時差的國家，在使用多顆藥物組合的時候，還要計算與台灣的時差，以免在不對的時間吃到不正確的藥物。這些在這麼多年來都已習慣成自然，變成是日常的一個儀式。真的，順從服藥沒有想像中那麼困難。</p><p>我很幸運，在這些年來碰到的對象，對我的狀況都能理解。</p><p>我的想法很單純，如果真要和我走下去，我不會隱瞞對方什麼。如果因為我的感染者身分而懼怕，讓我連解釋的機會都沒有，那麼我也不強求，一個人，我始終過得很好。現在交往中的對象，我記得是他開口的，很認真地討論彼此的關係時，他希望彼此坦坦白白再來討論下一步。當然，他對我坦白的是自己的家庭狀況，工作狀況這些資訊。我也心一橫，記得是在入夜的街道邊，兩個人坐在長椅上瞎聊。我對他說：「我HIV確診，如果你能接受，我會盡我一切力量保護你。如果你不能接受，那你現在轉身離開我也不會怪你。」空氣凝結了大約十秒吧——車燈亮光從我倆的身邊滑過，三三兩兩經過的路人談笑聲從大聲隨著距離變遠而轉為幾乎聽不見的細語，車陣依舊喧囂。我不敢直視他的眼睛，彷彿像是做錯事的小孩一般，等待最後的裁量結果。而他，起身，在我面前踱了幾步，抱著我，一個字都沒有說，就抱著我。好像過了一個世紀這麼久的時間之後，他開口了：「走吧，去吃點東西。」而且完全不在乎路人的眼光，拉著我的手把我從長椅上拖起就這樣牽著。那雙牽著我的手，到現在還是同一雙，牽著我。</p><p>我不能說自己這十年來沒有轉變，但至少都是相對正向的。從面對確診事實的驚慌、無奈、自責，到能面對自己狀況的坦然。每次回診，在診間與醫師、個管師和護理師天南地北聊著，就是老朋友們定期見面的那種熟稔。每每在診間門口，一眼掃過去總是會有幾雙無助放空的眼神。我很想走過去與他們分享這一路走來自己的心情。真的，這一切，或許不容易，但確實沒有想像中艱難。也許社會的眼光還無法讓自己很自在地活著，但我知道自己的靈魂始終堅強及純淨，一如剛來到這世上時一樣。</p><p>人生的道路從來都不會好走，追求有價值的事物從來都不容易，但你必須去付出。現在的你，請不要害怕，不要否定自己。確診只是一種身分，世人的眼光再怎麼偏狹，影響不了你的靈魂。一如卡繆說過：「<i>我知道這世界我無處容身，只是，你憑什麼審判我的靈魂。</i>」是的，只要你始終沒有放棄過自己，那麼，從來沒有任何人可以審判他人。我們也不需要因為他人的言語，而看輕自己與折磨自己。</p><p>同樣的十年後，看到這些文字的你，一定可以這麼自在且自信地活著！</p><p> </p><p><span style="color: #ff3300;">註1</span>：人類免疫缺乏病毒（Human Immunodeficiency Virus），簡稱HIV，又稱愛滋病毒。</p><p><span style="color: #ff3300;">註2</span>：「CD4細胞」指帶有CD4受器的T細胞，是人體免疫系統中重要的免疫細胞。HIV專門攻擊帶有CD4受器的細胞，造成免疫力變差，藉由CD4檢驗，測量血液中CD4細胞數值，可作為免疫力指標。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-a-decade/">十年</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>關於我和家人生活中的小故事</title>
		<link>https://iknowledge.info/2023untold-between-me-and-family/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 10 Aug 2023 12:00:22 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17270</guid>

					<description><![CDATA[<p>來電的當下，我在旁充滿著困惑，當天手機並沒有收到任何來電與未接號碼；父親同樣充滿著疑惑，為何是直接打給他詢問我的近況？母親則是驚訝，外加些微責怪，以為是我刻意不接陌生來電；還有些微生氣，這種比較隱私、敏感的個案關懷，怎麼會是直接打到個案父親的手機來詢問？</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-between-me-and-family/">關於我和家人生活中的小故事</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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									<p><b>作者：道銘</b><br />發生年代：2021年</p>								</div>
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									<p><strong><span style="font-size: 24px;">羅生門</span></strong><br />數年前的某天下午，父親的手機突然接到衛生所來電，電話中傳來：「您好，我是衛生所人員，定期追蹤個案，請問OO（我的名字）近期如何？有定期回診？跟按時服藥嗎？」</p><p>來電的當下，我在旁充滿著困惑，當天手機並沒有收到任何來電與未接號碼；父親同樣充滿著疑惑，為何是直接打給他詢問我的近況？母親則是驚訝，外加些微責怪，以為是我刻意不接陌生來電；還有些微生氣，這種比較隱私、敏感的個案關懷，怎麼會是直接打到個案父親的手機來詢問？</p><p>好在當時早已向家人公開感染者身分，很幸運的是，家人也都接受與支持。雖然這通電話，並沒有造成太大的困擾，但至今為止，依舊是滿滿的疑問。</p><p><strong><span style="font-size: 24px;">趣事</span></strong><br />家中是做生意的，某一天，一位很高、很帥的新業務，前來做拜訪與交接，當業務離開後，父親轉頭對我說：這新業務蠻高、蠻帥的，也一表人才！不過感覺應該不是圈內人……</p><p>聽前半句，滿是認同；聽後半句，滿是意外，甚至覺得有點可愛，很少有父親會與兒子談論這種話題……</p><p><strong><span style="font-size: 24px;">暖心</span></strong><br />在三年前曾經歷了一場情傷，和家人工作時，狀態都盡量表現正常，只是變得稍微不太愛講話，打算一個人慢慢地消化情緒。某天（情傷第三天）下班，我在用電腦，父親原本正在追劇，突然轉頭，很正經地對我說：「感情不是唯一的，我希望你不要把感情看得太重，一段感情不一定能陪伴你過一輩子。」</p><p>當下蠻意外的，雖然父母親都知道我的感情近況，但分手一事，並沒有讓家人知道，而父親卻隱約地察覺到，並主動來安慰。</p><p>我曾因性向的出櫃，與家人關係疏離；卻因愛滋身分的公開，而與家人關係回溫。家人的轉變與認同，是支持我最大的動力之一。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/2023mentalhealth/"><u><a href="https://iknowledge.info/the-untold/">《愛如果有聲音》專題報導</a></u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-between-me-and-family/">關於我和家人生活中的小故事</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>愛滋沒問題的，沒有愛才有問題</title>
		<link>https://iknowledge.info/2023untold-families/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 03 Aug 2023 12:00:24 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17516</guid>

					<description><![CDATA[<p>他安靜了好一會，低著頭說：「我得了愛滋，今年健康檢查我因為擔心五年前的那個意外、特別到衛生所做了這項檢查，HIV 陽性。 我怎麼有臉留在她身邊？萬一她被我傳染怎麼辦？」我的確驚了一下，也下意識了把身體往後靠遠離他，還好我馬上想起我對愛滋的知識...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-families/">愛滋沒問題的，沒有愛才有問題</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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						<span class="elementor-alert-title"> 【寫在前面】</span>
			
						<span class="elementor-alert-description">沒有愛才是關係的殺手，只要你們依然彼此相愛，這才是最重要的，當初你陪伴她經歷化療，現在她陪你接受治療，是很正常的事。<br>最重要的，我覺得你不需要為這件事情感到羞愧或不斷責備自己，把責備自己的力量拿來愛對方比較實在吧。</span>
			
			
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									<p><b>作者：丁寧</b><br />演員 / 作家 / 瑜伽老師</p>								</div>
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									<p>愛沒有勇氣是展現不出來的。</p><p>「我決定回美國去跟我父母住。」Rebecca 擦掉她的眼淚，說出這句話。</p><p>她大概已經哭了45分鐘了，像她這麼愛面子的人，如果不是極致的痛苦，她不會讓自己哭得像融化掉的蠟像，對比上她身上那一套Diro的套裝，讓人很心疼。</p><p>當初她得乳癌跟我說的時候，也只是右邊的眼睛掉下一滴眼淚，就這樣，連哽咽的聲音都沒有，堅強到像在說別人的故事一樣。</p><p>其實我也很震驚，這對夫妻熬過了老公海外的外遇，挺過老婆的兩次復發，頭髮掉了又長長了又掉，Nick賣掉公司一半的股權，全心全力陪老婆醫院化療、做瑜珈、練氣功、旅行、學做菜， 連他最心愛的重機都賣掉不騎了，兩個人安穩的過了五年，形影不離，好朋友都說她生這場病真值得。</p><p>三個月前在 Rebecca 50 歲的生日，Nick籌備了半年，包下飯店頂樓游泳池， 邀請了 Rebecca 全台灣的好友來參加（交通食宿全包，包括R住在台東的乾媽），就是要給老婆一個驚喜， Rebecca 驚訝喜悅的表情還在我的腦海裡，那是我參加過最充滿愛的生日派對。</p><p>「他說他想一個人生活，屁拉，一定是外面有女人，過了 5 年又來這招。當初我應該就要跟他離婚，不要相信他，拿走他大半財產，我真是笨死了我！」我知道她在說氣話，他們怎麼熬過這五年我都看在眼裡，但是我很擔心Rebecca熬不過另一個5年。</p><p>他們都在一起，走過彼此的年少輕狂，創業艱難，為了不讓Nick擔憂，她說她自己不想要有小孩，讓她可以專心輔助先生，自己常常跑到我家來玩小孩，公司事業大成上市上櫃，5年前的那場外遇，其實是意外的歐洲一夜情，誰知對方從臉書上發現Nick的財力，循線勒索，最後夫妻倆討論委託法國的律師出面處理，之後，Rebecca 就乳癌復發，N 當然自責，有一次他跟我老公出去小酌，N 哭得像小男孩一樣，不過他們都再也沒有提起這些事，就是專心治療過日子。</p><p>我決定自己問他。</p><p>我們在咖啡廳大概已經坐了半個小時，他一句話沒說。</p><p>「我相信你堅持要離婚一定有不可避免的理由，但如果你不說實話，我是很擔心 Rebecca 會不會復發？ 她如果再一次復發，你沒有在身邊，我怕他會熬不過去，我不相信你有別的對象，你有多愛她我是知道的。」</p><p>他低下頭眼淚從鏡框下汩汩的流出。</p><p>「我沒有臉留在他身邊，我什麼都可以給她，我什麼都不需要。」 男人脆弱起來真的很讓人心疼。</p><p>「她要的是真相，不是錢，你知道的。你們多大的困難都挺過去了，你們兩個人的結果不應該是這樣。」我說。</p><p>他安靜了好一會，低著頭說：「我得了愛滋，今年健康檢查我因為擔心五年前的那個意外、特別到衛生所做了這項檢查，HIV 陽性。 我怎麼有臉留在她身邊？萬一她被我傳染怎麼辦？」</p><p>我的確驚了一下，也下意識了把身體往後靠遠離他，還好我馬上想起我對愛滋的知識。</p><p>我靠近他，握著他的手，他本能地要把手抽開說：「不可以，會傳染。」</p><p>我把手握得更緊說：「不會！ 你有上網去搜尋愛滋的傳染途徑嗎？ 」</p><p>「沒有，我只想躲起來，我太羞愧無法面對。」</p><p>「愛滋患者一樣可以跟對方發生性行為，保護措施做好，日常生活也不會有影響。 只要把身體照顧好，接受治療定期檢查，就可以成功抑制病毒，病毒指數降低，也可以懷孕生小孩，一樣可以跟伴侶過著正常生活。」</p><p>沒有愛才是關係的殺手，只要你們依然彼此相愛，這才是最重要的，當初你陪伴她經歷化療，現在她陪你接受治療，是很正常的事。<br />最重要的，我覺得你不需要為這件事情感到羞愧或不斷責備自己，把責備自己的力量拿來愛對方比較實在吧。」</p><p>他看著我，眼神從乾凅慢慢燃起一絲生機。</p><p>「我知道了，謝謝妳，謝謝。不過妳要不要把手收回去，不然人家會以爲妳有外遇，畢竟妳也是個名人，而我也不想上週刊封面。」</p><p>我們兩人大笑，我說：「不過我還是要抱抱你。」</p><p>他本來有點抗拒。</p><p>「沒問題的。」</p><p>我們擁抱一起，「你們的愛得來不易，不要輕言放棄。」</p><p>其實我們都是。</p><p>之後，他們又一如往常，我們也常出來吃飯，只是他們習慣先將公筷擺上。</p><p>愛滋沒問題的，沒有愛才有問題。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-families/">愛滋沒問題的，沒有愛才有問題</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>與『愛』何干？</title>
		<link>https://iknowledge.info/2023untold-love/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 27 Jul 2023 12:00:25 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17138</guid>

					<description><![CDATA[<p>愛滋病，這一個80-90年代，讓世界恐慌無藥醫治，並導致社會以『道德』來指謫感染者，無論男女都畫上不檢點的等號。儘管以目前的醫藥技術，都可以簡單到一天一顆藥，U=U測不到等於傳不了的情況，要說出自己是感染者，仍是個讓人恐慌與身處社會壓力的魔咒，無論家庭、朋友、同儕甚至『愛人』...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-love/">與『愛』何干？</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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						<span class="elementor-alert-title"> 【寫在前面】</span>
			
						<span class="elementor-alert-description">恐懼，是所有感染者第一個襲來的巨浪，你可能就此被淹沒，覺得人生就此溺斃，於是放棄對自我愛人與被愛的能力⋯⋯但是，如果你相信『愛』是存在的，那這道巨浪將成為你變為更好自我的跳板，你將重新看待你的人生與勇氣。</span>
			
			
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															<img loading="lazy" decoding="async" width="990" height="660" src="https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1.jpg" class="attachment-full size-full wp-image-17149" alt="與『愛』何干-名人導讀郭蘅祈" srcset="https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1.jpg 990w, https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1-700x467.jpg 700w, https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1-300x200.jpg 300w, https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1-768x512.jpg 768w, https://iknowledge.info/wp-content/uploads/2099/07/0-3-p1-370x247.jpg 370w" sizes="(max-width: 990px) 100vw, 990px" />															</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/0-3-p1-q7zroqfhi55p3lv1rv9wb51ezdv8d9ogygvu3813sg.jpg" title="名人導讀-郭蘅祈" alt="與『愛』何干-名人導讀郭蘅祈" loading="lazy" />															</div>
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									<p><b>作者：郭蘅祈</b><br>愛之日常音樂節主辦人 / 音樂創作者 / 歌手</p>								</div>
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									<p>看著這些感染者誠實『發聲』，如何穿越自我質疑、懊悔、恐懼的陰影，在生活裡轉化為自我肯定、積極、自在的光芒，確實為他們感到辛苦與欣慰。</p><p>愛滋病，這一個在80-90年代，讓世界恐慌無藥醫治，並導致社會以『道德』來指謫感染者，無論男女都畫上不檢點的等號，無論是主動還是被動感染者。儘管以目前的醫藥技術，都可以簡單到一天一顆藥，U=U測不到等於傳不了的情況，要說出自己是感染者，仍然是一個讓人恐慌與身處社會壓力的魔咒，無論家庭、朋友、同儕甚至『愛人』。</p><p>感染者在過往，第一個想法就是我這輩子不可能再有伴侶，甚至不可能有親密生活了，不可能再去愛一個人或是值得去被愛….而這樣的觀念即使在U=U的現今，仍然是一個難以啟齒自我陰暗不可說的秘密，怕說了親情就崩盤了，朋友就遠離了，愛人就分手了…..於是選擇做一個社會健康的暗黑者，始終活在糾結的人生裡，永遠是個失敗人生的倒霉鬼，放棄愛人與被愛的權利。</p><p>這讓我想起近期83歲過世的巨星 __蒂娜透納，她年輕時慘遭父母拋棄，在婚姻裡受到家暴與虐待，在她整個青春時光裡，充滿了所有負面謬誤的思想，先生甚至讓他相信，離開他就會人生事業崩毀…..直到她自我的覺醒那天的到來，她堅持著打了16年的官司才正式離婚，期間為了糊口都曾以清潔工為業，而在此期間，她始終告訴自己，我屬於我自己，我有選擇自己人生的權利，儘管這個社會，甚是命運如此待我，我必須忠於我自己，相信我自己，看重我自己，儘管我有如此難堪的過去，我都必須直視面對它，讓它成為變成更好自我的力量。於是她在40幾歲重回樂壇，並成功拿下12座葛萊美獎的榮譽，成為美國殿堂級的歌手。</p><p>恐懼，是所有感染者第一個襲來的巨浪，你可能就此被淹沒，覺得人生就此溺斃，於是放棄對自我愛人與被愛的能力，實在的說，你必將遭逢這個社會給予你最黑暗的回應，或者說…就是現實的回應吧，因為當今台灣社會的確在各角落裡，仍然帶著強大的歧視在看待感染者。但是，如果你相信『愛』是存在的，那這道巨浪將成為你變為更好自我的跳板，你將重新看待你的人生與勇氣，它連帶地將感染周遭與你相關的『親人』，因為『愛』你開始懂得尊重你與自己的身體，也因為『愛』讓你與這個社會有了改變的契機與視角，儘管過程必經艱辛，但因為相信自己、愛自己，於是有了面對的勇氣。</p><p>期待這樣愛的『發聲練習』持續在社會上練習著，不因有了這個『不可怕』的疾病而讓你失去愛的能力，愛本身就是一種包容與接納、分享的能力，至於其他…</p><p>與『愛』何干？！<br />What&#8217;s Love Got to Do with It？</p>								</div>
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															<img decoding="async" src="https://iknowledge.info/wp-content/uploads/elementor/thumbs/實體書-愛如果有聲音s-q7id7wihqlby8frrdvucaclk4awpssyotx6uw64phc.jpg" title="實體書-愛如果有聲音s" alt="實體書-愛如果有聲音s" loading="lazy" />															</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-love/">與『愛』何干？</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>了解・從傾聽開始</title>
		<link>https://iknowledge.info/2023untold-interpersonal/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 20 Jul 2023 12:00:52 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=16942</guid>

					<description><![CDATA[<p>我唱過很多「說故事的歌」，每一首歌都是一則人生故事，這些歌用不同的語言寫成歌詞，敘述著不同的情節。一首歌之所以動人，是因為聽見唱歌的人用歌聲傳遞的情感，聽見歌詞裡描述的故事，我們聽見不同的人生，卻被相似的情緒所感動，這就是所謂的「同理心」。</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-interpersonal/">了解・從傾聽開始</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
]]></description>
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						<span class="elementor-alert-title"> 【寫在前面】</span>
			
						<span class="elementor-alert-description">很多時候，我是一個聆聽者，專心聽的人最能了解，被記錄下來的感動都是真實的。很多時候，人只要被聆聽、被了解，在脆弱時刻知道有人懂得，心情就能獲得抒發與療癒。每個故事都值得被好好聆聽、閱讀...</span>
			
			
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															<img loading="lazy" decoding="async" width="990" height="660" src="https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1.jpg" class="attachment-full size-full wp-image-17110" alt="了解從傾聽開始-名人導讀蕭煌奇" srcset="https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1.jpg 990w, https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1-700x467.jpg 700w, https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1-300x200.jpg 300w, https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1-768x512.jpg 768w, https://iknowledge.info/wp-content/uploads/2099/07/0-2-p1-370x247.jpg 370w" sizes="(max-width: 990px) 100vw, 990px" />															</div>
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									<p><b>作者：蕭煌奇</b><br />創作歌手</p>								</div>
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									<p>我唱過很多「說故事的歌」，每一首歌都是一則人生故事，這些歌用不同的語言寫成歌詞，敘述著不同的情節。一首歌之所以動人，是因為聽見唱歌的人用歌聲傳遞的情感，聽見歌詞裡描述的故事，我們聽見不同的人生，卻被相似的情緒所感動，這就是所謂的「同理心」。</p><p>人常常以看見的外表第一印象下判斷，但是刻板印象不能表達一個人的全貌，看得見的只是一小部分，還有許多看不見的過去與經歷，藏在冰山的海平面底下。愛滋早已可以吃藥控制，不再是絕症，但是還有許多朋友因為不了解，而對愛滋病患者或愛滋感染者存在著偏見，造成「疾病污名化」。<span style="font-size: inherit;">這次愛滋感染者權益促進會舉辦「發聲練習2.0」徵文活動，將成果集結為《愛如果有聲音——20 篇愛滋故事的發聲練習》， 讓我們聽見關於愛滋感染者的故事，讓大眾有機會一窺冰山的內在。</span></p><p>「我友愛滋」這七篇故事是以感染者身邊人的角度，去述說他們看見、聽見的故事。這些說故事的人因為不同的機緣與感染者有緣相識，有與愛滋感染者從小一起長大的拜把兄弟、鄰居，有在藥品公司負責愛滋治療藥物的業務，也有只是在酒吧萍水相逢聊起來投緣，而聽到了對方的故事。</p><p>其中有個故事有著看似陳腔濫調的開始，卻有命運捉弄人的轉折。二十多年前社會風氣較為保守時，才華洋溢的男同志「喬伊」因性行為感染愛滋之後回到故鄉調養身體，在家人支持下服藥控制病毒數量、維持健康的生活方式、以及定期檢查，他的病情獲得控制，喬伊在家鄉跟媽媽一起創辦了幼稚園，專門收留貧窮、弱勢的孩童，將愛和溫暖傳遞給這些有著不幸遭遇的孩童們。原本以為會是快樂結局，喬伊卻在這時突然因為一場車禍意外離世。與喬伊一起長大的同學記錄了這個故事，寫下喬伊剛獲知得病時的掙扎心情，對生命不放棄希望的積極努力，以及突如其來的噩耗。</p><p>還有被渣男前男友傳染愛滋的單親媽媽，經歷是否要結束生命還是要生下孩子勇敢活下去的心理掙扎；有水電師傅愛上同是愛滋感染者的紅顏知己，以柏拉圖式的戀愛相知相惜，互相作伴。因毒品入獄的大哥一起長大的拜把兄弟，探監被拒絕七次之後才終於見到面，大哥因為施打毒品時共用針具，感染了愛滋，希望兄弟寫下他的人生故事，幫助有緣閱讀的人能夠懸崖勒馬、遠離毒品，他陸續見了大哥八次，聆聽他的故事，第九次探監時，獄方卻告訴他大哥出獄了，沒有留給他一點消息 &#8230;</p><p>聽完這些故事我發現，真實人生的情節有時比我們想像的還要曲折離奇，感染者面對疾病，跟其他人面對人生困境時的狀態，其實是非常相似的，感染者面對疾病也各自有不同的心態與苦處，有的豁達，有的驚慌，有的積極奮發，有的逃避現實，透過這些旁觀者視角的近距離觀察，看見有血有肉的真實人生，我們可以立體的感受到感染者生命的厚度。</p><p>很多時候，我是一個聆聽者，專心聽的人最能了解，被記錄下來的感動都是真實的。</p><p>很多時候，人只要被聆聽、被了解，在脆弱時刻知道有人懂得，心情就能獲得抒發與療癒。</p><p>每個故事都值得被好好聆聽、閱讀，推薦大家來閱讀《愛如果有聲音——20 篇愛滋故事的發聲練習》。</p>								</div>
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									<span class="elementor-button-text">我想購買實體書</span>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-interpersonal/">了解・從傾聽開始</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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		<title>在閱讀《愛如果有聲音》之後</title>
		<link>https://iknowledge.info/2023untold-growth/</link>
		
		<dc:creator><![CDATA[C小編]]></dc:creator>
		<pubDate>Thu, 13 Jul 2023 11:55:00 +0000</pubDate>
				<category><![CDATA[愛如果有聲音]]></category>
		<category><![CDATA[HIV愛滋]]></category>
		<category><![CDATA[愛滋倡議]]></category>
		<category><![CDATA[感染者故事]]></category>
		<guid isPermaLink="false">https://iknowledge.info/?p=17560</guid>

					<description><![CDATA[<p>愛滋病對醫療人員來說，就是一個診斷。但它不同於感冒、發燒這樣常見簡單的情況，被汙名化的相當嚴重。儘管知道有這狀況，真實在日常生活細節上會有怎麼影響？「我和家人間生活的小故事」由三個小故事集結而成，用彷彿再輕鬆簡單不過的口吻，訴說著隨時可能會讓整個家庭一觸即發的爆炸情節...</p>
<p>這篇文章 <a href="https://iknowledge.info/2023untold-growth/">在閱讀《愛如果有聲音》之後</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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						<span class="elementor-alert-title"> 【寫在前面】</span>
			
						<span class="elementor-alert-description">原來叫錯這件事情，已經是該病人變性的很大衝突點，從家庭到朋友與社會連結都斷裂，還在努力適應著全新的變性後身體，卻又被醫護人員的無心之舉給踩痛了…</span>
			
			
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									<p><b>作者：小劉醫師</b><br />外科作家</p>								</div>
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									<p>愛滋病對醫療人員來說，就是一個診斷。<br />但它不同於感冒、發燒這樣常見簡單的情況，被汙名化的相當嚴重。<br />儘管知道有這狀況，真實在日常生活細節上會有怎麼影響？<br />看了這篇娓娓道來的「我和家人間生活的小故事」後，更有感悟。三個小故事集結而成，用彷彿再輕鬆簡單不過的口吻，訴說著隨時可能會讓整個家庭一觸即發的爆炸情節。</p><p>首先是衛生所打錯電話這件事。</p><p>其實，要說錯也不算錯，電話是打對了，但…打過去時接通了的是非病人本身的其他家人。<br />而且接話的衛生所人員明顯是急於想要把工作內容確認完成每一項，不待對面電話交到正確病人手上，就開始一連串的「近期如何？有定期回診？跟按時服藥嗎？」，鉅細靡遺，只差沒把檢驗報告都一起順便講出來了…</p><p>其實，以我在醫院工作的經驗，這樣情況不是少見，應該說是…太例行公事了，沒有把病人病情隱私保護做到夠，只顧著把手上的工作完成。<br />但問題是，今天對面的病人所背負的疾病不見得會樂於被眾人所得知，尤其很多時候家庭一直存在有矛盾，會因此就撕裂了傷痕再次炸鍋！<br />還好作者只是疑惑為何電話會打到其他家人那邊去？其實很多時候，有些病人是會因此大怒的！<br />還好作者「已向家人公開感染者身分，家人也都接受與支持。」真是萬幸！</p><p>簡短幾字，就讓我深刻反省，醫療工作人員更應把「以人為本」的核心作足夠，珍視每個病人把隱私跟信賴交付到自己的那份心意。曾經在醫院看診時，因為過度忙碌與繁瑣重複的工作，不但失了笑容，在面對需要更多關心與用心的病人時，每個人員例行工事的煩躁反應，都加重病患看診時的心情惡化。</p><p>曾經有聽過類似的故事，已經變性的病人在回診時，因為健保卡上姓名與性別還未更改，雖然已經再三要求「<i>等會叫號到某某號時，不要叫舊稱『小姐』，拜託請稱呼為『先生』</i>」，還特地用了個字條小字標註著，迴紋針夾在健保卡上，結果看診第一位拿到該病人健保卡的是A人員，時隔一段之後輪班換到B人員叫名入診間看診，進進出出、人來人往，A忘了跟B強調這件事，B在第一時間開門唱名時就又喊了</p><p>「<i>某某『小姐』！進來看診！！</i>」<br /><br />等候區每個人都在張望、眾目睽睽下，病患以男性的外型進入了本應是女性現身的門內。<br />結果病患鐵青著臉進到診間內，當場淚流不止：「<i>我不是已經拜託過了嗎？為什麼還叫錯？</i>」讓醫護措手不及！</p><p>原來叫錯這件事情，已經是該病人變性的很大衝突點，從家庭到朋友與社會連結都斷裂，還在努力適應著全新的變性後身體，卻又被醫護人員的無心之舉給踩痛了…</p><p>類似像這樣的情況，在愛滋或性病相關看診的地方應該要更小心！或許用個管師單一窗口聯絡的方式、每次看診有專人引導、如果非親臨看診時另外通訊方法告知報告或追蹤的安全考量…等等，還有更多可以做努力的空間。</p><p>另外兩個小短篇故事，都是非常溫柔的家人談笑、在作者情商時給予鼓勵。這對多少還在經歷家庭革命的朋友來說，越輕描淡寫、就越刻骨銘心。</p><p>希望這系列的日常小故事，邊看著溫暖時，邊體會到這其中的不容易，疾病發生，眾人皆不願，唯有愛能化解其中的痛苦，帶來包容、體諒與希望。</p>								</div>
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									<p><span style="font-size: 30px;"><strong>延伸閱讀</strong></span></p><p><a href="https://iknowledge.info/the-untold/"><u>《愛如果有聲音》專題報導</u></a></p><p><a href="https://iknowledge.info/2022mde/"><u>《我的牙科就診經驗》感染者牙科經驗專題報導</u></a></p>								</div>
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		<p>這篇文章 <a href="https://iknowledge.info/2023untold-growth/">在閱讀《愛如果有聲音》之後</a> 最早出現於 <a href="https://iknowledge.info">愛知識 iKnowledge 聊聊那些不好聊的事</a>。</p>
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